Tag Archives: creativity

New art: The Watchers

The Watchers  and The wimter Tree of Creation
The Watchers at The Tree of Creation

NaNoWriMo – I finished it, and I’m a WINNER! But now what???

I did it! 50T words in a month...Now to actually finish the thing!
I did it! 50T words in a month…Now to actually finish the thing!

I want to finish writing the novel now that I have started it, and perhaps using the same agency I used for DIVIDED MINDS, if they want it, find a publisher. But we will see. I may have 50T words, and more, but who knows if it will be marketable at 100T words, and whether or not anyone will publish it. I may post another chapter here or not…I dunno. Doesn’t seem like it gets many readers (from my reading of the blog stats.) Anyhow, I don’t use the stats much because so far as I can tell much of blog land is a popularity contest of Like me and I will Like you back. And who knows who actually reads anything? So if I have a few loyal readers, that is all I care about. YOU, I  mean, who is there actually reading what I write. Thank you!

 

New Art: Study

Study/ Etude (or Your guess is as good as mine...)
Study/ Etude (or Your guess is as good as mine…)

Sometimes it Takes a Village …to avoid the Hospital

Sometimes it takes a village...of caregivers
Sometimes it takes a village…of caregivers

 

I swore that after I left Hartford Hospital’s Institute of Living last January, 2013, having spent the better part of a month in seclusion and many many hours brutally and punitively four-point restrained, I swore I would never go anywhere that would treat me like such an animal again. But then, having twice been treated at Yale New Haven Psychiatric Hospital once in early 2013 and finally later on that same year, discharged with piriformis syndrome from having been forcibly held down and injected in the buttocks  over and over with 3 different drugs, Haldol, Ativan and Benadryl, I said that I would NEVER again permit such torture in the name of treatment anywhere, no matter what they called it. No not even at Yale.

Given the massive traumas I have experienced these past five to ten years in Connecticut mental hospitals, abusive practices that have only increased since my first hospital stays in the 70s, I decided last August, post Yale: never again. Never again  would I go to  ANY hospital whatsoever.

 

To that end, my family, my family of origin, since I never married and have no money of my own, has taken it upon themselves to hire for me (or let me arrange for myself the hiring of) several personal staff members to “come on board” for me in my apartment 24/7 starting in late December and if necessary work through January, if there is a crisis. I haven’t gotten through any January without a hospital stay in several years, so it is a good thing to be prepared, on the one hand. But the very fact that I need not fear the hospital now might also mean I can avert the worst of any crisis! Who can tell? All I know is that we are all talking about how to help me primarily stay safe from what the voices command me to do, and how to do so without panicking or calling 911.

 

One thing I insisted upon was NOT using any agency, because while they serve a function, I suppose, they also pay their workers shit. And someone who is paid $8 an hour is not going to want to do the same quality of job for me, while sitting with me in my tiny apartment as someone who is getting the entire $20/hour, if you get my drift. And why would they? I need people who are committed to keeping me safe from myself at the height of any craziness that might assert itself, and if the voices command me to grab a pencil and suddenly stab myself with it, as they frequently have, I NEED to know that the person I have hired will be right there with me, ready to grab it from me, not in the other room reading a book, or cooking, or yammering on the phone to a friend. For $20/hour I think it might not be too much to ask. At $8/hour it might be.

 

For $20 an hour, a person can stay awake all night and not need to work another job immediately upon going home, so I will know that if I wake up in my recliner and hear command hallucinations to set myself on fire, she or he will be right there to stop me. Because that is how it happens, has in fact happened just like that.

 

It is the only way to do it. Unless $20 somehow is not enough to cut it, pay wise, (and I cannot afford to pay more, over all) (the people I hired are also already not working other jobs either…) I think it is not a bad wage, is it? Honestly now, tell me. I am not asking for much else but for someone to sit with me, talk with me IF i feel like it, and watch me to make sure I stay safe. The worst thing would be boredom I imagine.  But I don’t usually bore people even when ill. THat is not often their problem.  The problems are other things, for me at any rate, and those are that the people that sit with me in hospitals have NOT done their jobs properly at all, and have ignored all the warning signs, even my open pleas to please please “do your jobs. I am on “one to one” for a reason!

 

No, in the hospital, the aides just turn their backs and stand in the doorway, facing outward, away from the room i am in, and gab with the other aides, completely  ignoring the person they are supposed to keep their eyes on at all times. It is crazy. I remember a woman named Jennifer deliberately turned her back to me no matter where I stood in the room, and if I went in to the bathroom, she left the outer room entirely…which was such a rule breaker. She knew what was happening, I think she was playing a game to see if I was truly dangerous to myself or not…Or really just didn’t give a damn.

 

Is it any wonder that at one point at one hospital, I  asked to get off that status. It was simple: I just told them I was safe and they were so glad to reduce their workload they stopped the one-to- one immediately. The next thing I knew the voices had me begging to use my makeup compact. the one with a small glass mirror in it.

 

“Sure, you can. Just make sure you bring it back to the nurses station in five minutes,” said the Nurses Secretary, handing me the little black plastic thing.

 

Well it took all of three seconds for me to stamp on it with a hard soled shoe, break the mirror and slice up my left wrist bad…

 

Of course, they punished me for that. Or they would have, I know. But I remember, I wrapped a huge wad of paper towels around all the blood and told no one for hours, so when I realized that I needed stitches and had to admit to what I had done, it was too late for them to respond with the punishment of 4-point restraints…

 

The point is, the aides weren’t evil. Not all of them, or at least their lackadaisical attitude was borne out of a lack of caring which itself was spawned by being paid little to nothing. Why should they care? It was just a job to most of them, and little better paid that flipping burgers at a restaurant. Worse than that, because they had no perks and no tips.

 

So when I hire someone to sit with me, talk with me, keep me safe both from myself and hospital abuse, I pay them $20 per hour (and even $30 per hour over time during snow storms etc), I expect them to be responsive and not lackadaisical. I do not think that is too much to ask or demand. My life and health and bodily integrity depend on it.

NaNoWriMo – 3rd Installment, November Novel: We Are Hope’s Family

Feder spoke into the darkness of Hope Ouestelle’s apartment. No one answered. “Hope?” Again there was no answer. He peered through the dimness of black and gray shapes that he hoped were just her papier mache people and creatures. “HOPE! Where are you? “ He stepped inside and moved forward, fumbling blindly for something to guide his way. Just then, his hand fell upon a lamp and he was about to pull the cord, when Hope yelled out from the bathroom.

“Don’t try to turn on the lights! I am doing something here and any light will ruin it! Just wait a goldarned minute, okay?”

Happy to hear her voice, Feder felt for a chair, slid into it and rested. At least Hope had lights, which meant that she had not lost her utilities the way some of the buildings tenants had, not yet at any rate. Not the way he had. Feder was ashamed of himself and was half afraid to admit it to Hope that he had spent too much money this month.  On  important things, yes, but also things that experience told him most people would not understand, like repeatedly paying to go through the turnstile at the Parkland, just to feel the rolling thump of the bars against his body. Why did he like this and why did he do this? He didn’t know what it was about that admission turnstile but there was a moment, right inside it, when the bars felt like they locked and might not release him, and he felt such anxiety it was almost pleasure, and then they did, they let go and that was so  — what? It was so mysterious a pleasure that he had to do it again. Yes, he knew that there had been a rate increase in the electricity bill this month, that he had to pay $30 more, but somehow entering the turnstile had used up that $30 and he hadn’t been able to pay his bill and now his apartment had neither lights nor heat.

What was Hope going to say when he told her? He wasn’t going to ask her for money. She wouldn’t have any extra in any event. He just hoped that she would let him eat with her in the evenings, and cook his supper in her apartment with her the way she had the last time this happened. She might even, maybe, perhaps, let him sleep in a chair in her artroom/living room if it got really cold in his apartment. That’s what she had done the last time and he could only hope she would do it again.

But he remembered what she had said to him the last time he slept there the previous spring, before he left for his apartment, after the weather turned warm again and daylight savings time returned. ”Feder, I cannot keep rescuing you from yourself. What am I doing? Am I helping you or hurting you by letting you stay here? I honestly do not know.”

Feder hadn’t known what to answer. How could she hurt him by letting him cook his food in a lighted kitchen or sleep where it was warm? How could it hurt him to help him? But Hope had her own ways of thinking and he had to keep that in mind. She did not understand the draw of the turnstile, and he knew she would think it strange to the point of bizarre. Everyone did. Everything he did looked strange to people. He was bad. Bizarre was bad, bizarre could get you taken away. But Hope should understand that. She was regularly taken away herself for what others thought was bizarre behavior: sitting in her artroom, talking to herself or to her papier mache people, or listening to voices of people no one else could hear, and doing what they told her to do, harmful things to herself, things like putting out cigarettes on her skin or cutting off pieces of herself with the sharpest of scissors. Talk about bizarre.

Feder at least had never been taken away. Not since he was a kid. But he would not think about those days. To think about those terrible days in the screaming room was to invite trouble, the many hours tied down to a bed because he wouldn’t – couldn’t – stop spinning. The times the teacher pinched his arm to stop him from reciting names after names of things she did not have the same need to know and hear…His need to tell her the dates of everything that ever happened to him and her need not to hear him, to silence him. How she had so much power to do so. No! Mustn’t think about those bad times, black times, screaming times…Mustn’t think. Mustn’t think. He had to think about something else. Think about the turnstile, the turnstile. How the heavy rollers came across to stop a person from crossing, then how they caught him and held him ever so briefly—that strange mechanism he was never sure he saw properly – and then how they always gently released him safely to the other side. He would think about the turnstile if he had to, until Hope came out of the bathroom.

But then thinking about the turnstile reminded him of the fact that he had not paid, could not pay, his electricity bill and how there was neither heat nor lights in his apartment. He did not want to admit this to Hope…The need to recite took hold, as it always did when anxiety got the best of him and he seized the information that was closest at hand: His name was Feder Prisma  and he was 31, born Jan 5, 1979, a Friday. Hope Outestelle, his best friend was age 57, born Sept 16, 1954, which was a Thursday, the 259th day of the year. Premjit Mukherjee, was their friend, and the building manager, aged 47, born on April 1, 1964, a Wednesday, the 92nd day of the year. Stashu Weissman, was from Poland, aged 79, b orn in 1931, Dec 25, a Friday 359th day of the year. Giorgio Ciabatta, the auto mechanic, at age 43 born, in Italy, Feb 19, 1968 on a Monday. Beatrice Bean age 84, was born on Sunday May 1, 1927, the 121st day of the year. Their Landlord Mr. Mukherjee, was age 71. He was born on Sunday, April 27, 1941, the 117th day of the year. On the fourth floor, Bryony Leurile aged 44 was born on the 82nd day of the year, Sunday, 1967, March 23rd. Then there was Kashinda Whitmore, age 27, who was born on the 305th day of the year, in 1984, on Halloween, a Wednesday. Darryl Strakesley aged 31 was born on  a Saturday, the 255th day of the year 1981, Sept 12th. Lupita Villareal, aged 62 was born on Sunday, the156th day of 1949, June 5. There were others, but he did not know their birthdays yet, so he started repeating the dates to himself. Hope  Oestelle, his best friend, was born on Sept 16, 1954, she was 57 now. It was on a Thursday–

“So, what do you think of this?” asked Hope, appearing suddenly in the equally sudden explosion of lights that came on all together when she flipped the apartment’s main circuit breaker.

Feder started.

He hated it when people wanted him to notice something. It was always a test he failed at. He guessed. “Your hair?”

Now that he said it, he looked to see if it was true that her hair was different. She had cut her hair as short as a man’s, yes. Not only that but it seemed that she had dyed it as well, a persimmon red.

“No, not my hair. That was just an experiment. Look.” She held out her hands, dangling papers for him to look at more closely.

It looked that she had been developing photographs, but these were very strange ones. So dark as to be nearly black, with purple streaks and outlines of leaves and circles.

“Kirlian photographs.”

“Yes! You know! Well, sort of. I am doing electro-photography, and developing the Polaroids myself. I wanted to see if I could make this camera out of things I bought at GoodWill, and it turns out I could, mostly. But Feder, I’m really disappointed. The photos are awful. I was expecting something different. These are ugly. I think auras should be beautiful…” She retracted the photos instead of handing them to Feder, and tossed them aside with a shrug. “You win some, you lose some. At least I didn’t spring for a real Kirlian camera. Those cost $500. I only wasted maybe fifty bucks, making mine. At least I can say that I built a working aura photography device, for all the good it did me.”

Just at that moment, Feder’s stomach took the opportunity to announce its hunger with a rumble. Hope heard. She looked at her watch with a frown.

“Haven’t you eaten, Feder? Do you want to have supper with me? I’m sure we can scrounge up something.”

Feder made a rueful face but nodded. “Yeah, I’m pretty hungry. Maybe you have some cereal I could put milk on? Captain Crunch?”

“Nah, I never eat cereal, Fayd, you know that. I could make you some oatmeal, but you hate my oatmeal. How about a peanut butter and banana sandwich and diet ginger-ale? I have some really good bread and about three bananas.”

Feder’s eyes lit up at the mention of his favorite sandwiches and he smiled for the first time that evening.

“Good. I’ll make the sandwiches if you peel the bananas and pour ginger-ale into glasses for us. Okay?”

Feder followed Hope’s carroty buzz-cut into the tiny kitchen and between the two of them they made short work of preparing their meal, then carried their plates out to where Hope’s art work occupied most of the living room. Hope pushed aside the Kirlian photographs and made room for Feder on the sofa, then flipped on the 12”  television propped on a stool on a milk crate in front of them. Eating intently, they hunched forward as the PBS show Nova’s logo blazed across the little screen.

“Oh, good, I was afraid we’d missed it, but we’re just in time,” Hope murmured between bites of sandwich. Feder never spoke while a television played; even when the programming failed to absorb his interest, the interchange of light and shadow on the screen never did. Television had calmed him from an early age, and his mother always placed his crib in front of a late night movie when he couldn’t sleep. Knowing she couldn’t talk with him now, Hope turned her attention to the program, hoping it would be about something interesting, something that would give her ideas for art.

People sometimes thought it strange that Hope, who was passionately an artist when she wasn’t ill, but who found it difficult to read or even concentrate listening to books on tape, nevertheless devoured television shows and documentaries on science. From natural history to physics, from geology to chaos theory and beyond, everything scientific intrigued and fascinated her, and she used what she learned in her art, in a multiplicity of ways. “What else is art for if not to express what science teaches?” She had said this to Prem one day when he asked her why she used cell motifs when painting her sculptures. “It makes no sense to separate them. If art does not serve science, what good does it do? Art can’t serve art. That would be silly, like a translator translating from one language into the same language. A waste of time. No, maybe art has other purposes too, but one of them I am certain is to interpret science, to express it for those who do not understand it any other way.”

When she had finished she looked up at Prem, as if surprised by her own words.. Not by the thought, but by the passion with which she had shared them, and the fact that she had spoken at length about such things to anyone, and even more so, to Prem, the landlord’s son. She remembered she had backed away, eyeing him warily. What did he care why she made art or what it meant to her? He wouldn’t give a damn. Why didn’t she just learn to keep her mouth shut and leave people alone? Now she would pay, that much she knew. He’d soon be spreading gossip about the know-it-all in Building 22, second floor apartment B, the one who makes the crappy art and couldn’t even read a book to save her life. It was true, her art was crap, pure crapola, and she knew it. If she was any good, well, she would be better at selling it, now wouldn’t she? And it was painfully true that she didn’t read, hadn’t read a book in years, simply could not. If she so much as opened a book she fell asleep. The rare times she didn’t, the words – indeed the letters themselves—soon swam and danced before her eyes impenetrably confusing, impossible to put them together in any sensible way and make them into single words, let alone string into sentences and paragraphs that made sense. She wanted to read books, but the books escaped her. The refused her eyes. They fled from her, as if defying her and mocking her. Nyah, nyah, they scolded. Eat your heart out, but you can’t have us! It was such a struggle, and Hope could do nothing, say nothing. She could not even complain or feel sorry for herself. Why? Why? Because…because…She didn’t know why. It was all her fault, all her fault. Everything was her fault and deserved punishment. No wonder the voices had for years told her to burn herself with cigarettes and intermittently wanted her to set herself on fire or cut off pieces of herself. No wonder. She was the scum of the scummiest. She was the scum of the earth. She was the devil incarnate. Hope pounded her fist on the arm of the sofa, forgetting that Feder was sprawled next to her. Luckily, he had fallen nearly asleep after the program ended. He raised his head at the sound.

“It’s nothing, Feder” Hope said, standing up and pulling a throw over him. “I dropped something. Stretch out now, and go back to sleep. I’m going to bed too,”

As he lay down, Feder called out to Hope, “Hey, Hope! What are you going to do with the electro-camera?”

“I dunno. I was going to take it apart. Why? Do you want it?”

Feder, half-asleep but serious, responded, “Yah, I have some ideas…Let me use it. I’ll pay you back if they work out.”

Hope, heading towards her bedroom, beating her head with her fists in a private frustration Feder failed to notice, replied as calmly as she could, “No problem, you can keep it for as long as you want it.” Then she closed the door between them.

“Thanks,” Feder mumbled to himself, tumbling into sleep.

“Jackass, you asshole…” Hope derided herself in angry mutters, still occasionally giving herself stiff thumps across the head. “You evil son of a bitch. Who do you think you are? You are the devil, the killer of the world.” She paused, stared blankly at something unapparent to anyone who might have been watching the scene, and mumbled a word or two. Nodded. Stared. Nodded again. Then she looked around, as if searching for something she had misplaced. She got up and padded across the bedroom to her dresser where she extracted a half-open pack of cigarettes. Approaching the bed, she stopped again as if listening to something. Again she nodded, twice. “Yes, I promise, I promise,” she muttered, then added, cryptically. “I will, if you will.”

Sitting on the edge of the bed, Hope pulled off her jeans. She extracted three cigarettes and lit them. Without hesitating she drew deeply on all three then immediately applied them firmly to the skin of her upper thigh, holding them in such a way that they burned but didn’t quite go out until she finally crushed the heads against her. Quickly, she repeated the maneuver, and again a third time. Finally, she pulled her jeans back on, drew her T-shirt down and hastily hid the remains of the extinguished cigarettes underneath the papers in the bottom of her wastebasket.

Calmer, but a bit dazed and still not ready to sleep, the cigarette lighter and pack in full view on her bed, Hope sat on the edge of the bed quietly, her head bowed, her hands in her lap. Her face, usually so mobile, was still and blank. But it was not a serene blankness. Rather, it was a blankness of confusion, as if she were not quite sure what had just happened. After about a half hour, she lifted her head, took a deep breath, frowned, and stood to clear away the debris of her recent actions. No point leaving any evidence around for Feder or anyone else to see. She could take care of her own wounds, and anyway, three times three wasn’t so terrible. She had done much worse before. No one ever died from nine cigarette burns, she just had to shut them up for a while…

It was well after midnight before Hope finally lay down under the covers and turned off her lights to sleep. And when she did sleep it was fitfully and to a book of troubled dreams. But sleep finally came and she didn’t wake until after Feder had left for the morning. She didn’t wake until the knocking at her door became outright banging.

NaNoWriMo – First Installment of November Novel (first draft)

WE ARE HOPE’S FAMILY 

In the beginning we called ourselves Hope’s Family just so we could get into the hospital to see her and to get her out of it too and so we could be seen as legitimate in taking care of her. But then the sound of the name began to ring in our ears like what Stashu calls the clarion bell of freedom, so we kept it and from December 2011 on that is what we have been known as, everyone in Building 22, including Premjit the Landlord’s son. We do not include, however, the Landlord. No. He is not part of Hope’s Family. He doesn’t like Hope one bit. He doesn’t even like Feder.  In fact, the Landlord was the reason we pulled together and became Hope’s Family in the first place. So while we are aligned against him, in a sense we have the Landlord to thank for making us one.

CHAPTER ONE: OCTOBER  2011

Premjit opened the door to Building 22 and noted the smell before he noticed the cracked doorjamb. Burned paraffin. Too much of it. Which could only mean one thing, that the utilities had been turned off again in some of the tenants’ unit and they were burning candles for light. Lord only knew what they were doing to cook their food. Premjit hoped they were using Sterno and not portable gas stoves in the stuffy little apartments all of which lacked adequate ventilation at the best of times. He could only hope against hope. Just last winter they had lost  a young man to carbon monoxide poisoning, and nearly lost the tenant in the apartment directly above him, when he tried to cook his boxed macaroni and cheese dinner on one of those treacherous stoves in his apartment. Not only that but after he passed out, he had nearly burned the building down but for the quick thinking of a neighbor who had smelled charring food, knocked on his door and when she had gotten no answer, quickly called the fire department.

This was an accident waiting to repeat itself. The writing was not just on the wall, it was on the staircase and on the walls and on the windows. You couldn’t cook with sterno. It took nearly an hour just to boil water for a cup of coffee, a single cup. But Sterno was too expensive to cook with even if they could use it. Something had to be done, and done pronto. All of Premjit’s tenants were on social security or disability, which meant a fixed income with little leeway to increase their payments to the Utility Company when there was a rate increase. This had been instituted a month before, for the second year in a row. Worse, the City had not been forthcoming this year with additional energy assistance. Oh, City officials claimed that private businesses and charities would step forward to help instead, that tenants needed only to look for help and they would easily find it elsewhere. But looking and finding help to pay for heat and lighting were too very different things.

Prem knew what the City did not. His tenants – well, they were not his, not really, yet he felt that they were truly in his charge, and were his concern in a way that his father did not – could not negotiate the tortuous ins and outs of getting private energy assistance. They were on disability for a reason after all, weren’t they? And for many of the tenants, disability entailed some measure of mental impairment in addition to a physical problem, if mental illness or intellectual impairment was not in fact the entirety of the problem.

Yes, Prem thought, Beatrice Bean – called Bay-a-tree-chay by those who had known her in New York City, but called Beanie by her real friends – Beanie, the spindly, towering former madam –turned-Cleaning-Coordinator, her thick poofed hair the color of old bones, even at 84 probably could help some of the others. But she was elderly and somewhat frail. She could not be expected to lead the entire Building 22 to private sector energy independence.

Then there was Stashu, Prem’s 70-something tenant. He was a resourceful survivor who would get heat and lights somehow if ever he lost them, which Prem doubted would  happen. Stashu  did not go without the basic necessities, having known deprivation in his youth that was almost literally unspeakable..

Building 22 had twelve Units and Prem estimated that as many as five could now be without utilities. Who knew how many would go “off grid” in the coming months? It was only October now, the first official month of “cold” weather according to City calculations, but temperatures still rose into the 70°s sometimes. What would the tenants do for heat in December when it sank below freezing in the darkest month of the year?

Premjit, though he was of Indian extraction, had never visited his father’s homeland, and had no close acquaintance with that extreme poverty. He had not been “hardened to the banalities of hardship” as his father liked to explain it. Far from it. Instead, as if in opposition to his father’s tough stance, Prem’s feelings had only grown more and more tender towards the tenants that the Landlord so oppressed. Which is why when his father refused to fix things like the doorjamb, which was more than merely cracked, he saw now, but broken clear through and held together only by the several coats of paint that disguised the imperfection, he felt not only impelled to repair things, but he also felt rage at The Way Things Are.

Prem loved his father, and he understood  completely how the Landlord’s upbringing in India had affected him in such a way as to harden him against the very people he ought to have treated with compassion, seeing them as privileged compared to those begging on the streets in his native land. But Premjit was not his father’s son, not in the traditional sense of those words. And the United States for all her flaws, was his home, and the poverty of the tenants was what he was familiar with, and pained by. Whether relative or not, he cared if they went hungry or were cold or had to use candles to see in the dark.

The worst of the worst case scenarios, which hadn’t happened yet in Prem’s memory, but which his father perennially threatened them with, was Eviction for Non-Payment of Rent. Disability status all but guaranteed a government subsidy that made paying rent possible for these tenants. But if ever the subsidy were withdrawn, if the Government in it is infinite wisdom and kindness were ever to renege on its agreement t care minimally for its disabled population (whatever you thought if the policy of disabling so many people, so young) the tenants would be out on the streets.

Homeless. The word struck fear into any tenant’s heart. To a one this was their greatest source of terror and vicariously Premjit’s as well. So far, no one had been evicted since Prem had become aware even vaguely of Building 22 in his consciousness, as a young boy living in a large white-washed stucco house in the suburbs, five miles away. That, despite the Landlord’s threats, so few had ever been evicted was testimony to the stability of the disability payment and to a subsidy systems that all but guaranteed rents were paid and paid on time.

Even Hope and Feder, the most unstable of the disabled in Building 22, paid their rent more or less on time every month. In fact, Hope managed to pay even when she was in the mental hospital. If she had to, she made sure that Feder brought her checkbook to the nurses station and  she wrote out her payment there, handing it to him to deliver to the Landlord well before the 10th of the month. Prem made a mental note to check on Hope and Feder, hoping that their apartments were not among those that had lost their heat and lighting. His two favorite tenants had enough  to struggle with, without having to deal with these additional privations!

Having calculated the cost of fixing the door frame and preparing  an under-the-door notice for all tenants in his head about not using portable gas stoves in Building 22, along with directions to neighborhood soup kitchens and inexpensive area restaurants where tenants who needed to could dine on the cheap until their heat and lighting situation was resolved. Prem made his way along the first floor hallway. Even as he walked, which was not that quickly or that quietly in his hard -soled shoes – he made noise because unlike his silent shoed father, gliding about the building late at night – he wanted Tenants to hear him and come out to join him, talk with him, share their problems, concerns, grievances. Or just to tell him anything they wanted to. He noted all the bulbs that had burned out or were dimming. He would replace them on his next walk-through.

Four floors with three units on each floor and a roof garden that Prem had put in a few years after taking over the Tenants care, Building 22 had always had an elevator, indeed it was supposed by law to have an elevator, being a building designated for the elderly and the disabled…Once upon  a time, Premjit’s father had put his foot down on the elevator situation, when the inspectors’ insisted that not only could  his perfectly respectable Schindler not be upgraded it had to be replaced by an Otis.

“Otis Schmotis” groused the Landlord. And he added some other choice words. But since he spoke in Hindi, Prem neither understood them nor could repeat them later on, though he understood the feeling tone behind them and “grokked” – understood instantly in that profound deep way—that the tenants not only would not be getting any state of the art “inferior Otis.” But neither would their beloved Schindler be getting repaired into serviceable employment again. Not if Pere Mukherjee had anything to say about it.

This hardness of his father’s heart shocked him into a new awareness. At the time, in 1989, Prem had been only 23 and not long out of college. He had had notions of applying to graduate school, maybe medical school, and becoming a professional, a doctor. But all those ideas had been as vague as dishes seen under the murky haze of dirty dishwater.

When the elevator situation in Building 22 swam into his consciouness, it was not lazily like a school of darting minnows on a sweet sunny summers day, but like a great white shark whose feeding grounds have been encroached upon: with ferocious gaping maw and sharp teeth, ready to swallow him whole.

He might have shied away, taken one look at Building 22 and the Tenants dire situations and said to himself: “I’m too young for this. It is not my fault. I didn’t ask to be put in the middle of this.” He could have turned his head and turned away, saying, “This isn’t a situation I am responsible for. I want nothing to do with it.” He was, after all, a very young man with a promising and full life ahead of him. He might have become a major player in a major profession. He might have gone far.

Luckily for Building 22 and its tenants Premjit did not see all this, or did not care. He saw only one thing: injustice and the fact that he could do something about it. It drove him to make a decision that day that changed, well, it changed only one small thing. Only a speck in the universe was really altered. But this speck was really the thing itself writ small, but he discovered it was the thing itself writ large too, like a fractal. Fractals! So much of nature as Premjit had read recently followed fractal geometries – sunflowers, nautilus shells, coastlines, mountain ranges, trees. Nature was all about the mathematics of roughness rather than algebra’s smooth perfections. With fractals, you needed only to change one input, one speck, and you changed everything. He was beginning to think this was true about people too.

————————————————

That is only part of chapter one. I have many more pp written, but i am off to North Carolina now to visit my brother and write. so I will add more in later days, perhaps from later chapters. We will see.

Art and Novel Writing

paint, pencil, ink, a little of everything in this one.
paint, pencil, ink, a little of everything in this one.
Salmon Painted House on Main Street in Wethersfield Trading Card…Copic Markers
Tree Of LIfe with quote from Proverbs
Tree of Life
Tree of LIfe  Tin box
Tree of LIfe (tin box)
Tree of LIfe (oval tin box)
Tree of Life with quote from proverbs on side
Tree of LIfe
Tree of Life
Frida Kahlo Eyeglass case
Frida Kahlo Eyeglasses Case
Blue-eyed Eyeglasses Case
Blue-eyed Eyeglasses Case
Purple Glasses Case
Purple Glasses Case

 

Several years ago, someone told me something that paralyzed me for years…She said, You can’t write fiction. Period. Oh, she granted that I could write poetry and creative NON-fiction yadda yadda yadda, but she, I expect, wanted me to stop writing fiction for some reason, I dunno why…and so she told me I was NO GOOD at it. Needless to say, being as sensitive a writer as almost all writers are, I took her words to heart, and I believed her. Why? I have no idea. My first writing teacher at the University of Hartford, who had taught writing for years, told a colleague that my short story (at 60 pp)was the best  he had had from any student ever. Along the way other teachers had said similar things. Even my agent for the book DIVIDED MINDS just loved the very same story that this critic decided I could never write fiction because of…

But I didn’t listen to my agent, even though she had gotten my sister and I a contract at St Martins Press and had worked at big-time publishing houses for years. She knew publishable authors, this other person was an independent editor of technical writing, …but you know what? I listened to her strictly because she had something negative to say to me, and I always believe those who want to hurt me…ALWAYS. If someone tells me something good about me, I think they are lying or trying to get something from me. But if they tell me something bad, or hurt my feelings? Well then, they must be being honest and want to help me, surely!

 

Hah!

 

Where I got that crap from I dunno because this person clearly didn’t want to further my development as a writer, she only wanted to crush me. I would never have told anyone to stop writing, EVER.  It kills them inside. Unless they happen to have been raised in such a way that they fight back…I was not. I simply folded and said to myself, “She told me I was no good, that I would never be able to write fiction, so I might as well give up right now.” And I did. For ten years.

 

Then I got an email about NaNoWriMo in my inbox and something inside told me I had to do it. National Novel Writing Month is in November of each year and you are supposed to write approximately 1700words a day (or a little less) to end up with a 50,000 word novel by the end. Of course, that is really only a novella, but the point is to say you did it  in only a month. Truth to tell, I have written and never shown anyone, two novels, of 300,00o words each, one in only three weeks time. Then I rewrote it in nine months, But I felt it wasn’t good enough for public viewing so I never showed it around.

 

Anyhow, the point is, I can write a novel, whether good or bad who is to say, but I know I can do NaNoWriMo and I decided to take back my power from this chick who decided she had the right to tell me what I could and could not do. EFF her. No one can decide for me what I can or cannot write. If I am not “good at it” now, that is not to say I cannot get better. That was her thing. She thought no one could improve by practice! Fool!

 

I will deliver an installment of my novel in a few days. I already have 32 pages. I won’t dump it all on you, but I thought you might like a taste.

 

Cheers!

New Dreamrly Journal: Submit your art or writing!

image

I just wanted to alert readers to a new journal that Kayla Bowen is starting at Dreamrly. She is asking for submissions up through January 14, 2014, so there is still plenty of time for art and writing of all sorts. See this link. http://dreamrly.com/2013/10/22/collective-dream-arts-journal-call-for-submissions/

Here is what Kayla asks for:

“High-quality visual arts projects (submitted in digital format), poetry, creative nonfiction, comics,short fiction, book reviews, essays, creative dream recordings, etc. by January 14, 2014. Not all submissions will be accepted, but I encourage everyone to submit his/her work.

This is a great opportunity to showcase your creative work – and, once the journal is completed, you’ll have the opportunity to see it in published format and to purchase a copy of the magazine (likely for around $15, but I’ll know for sure as it gets closer to publication).

Email submissions or questions to kayla.themoderndreamer@gmail.com by January 15, 2014.”

Why not submit your best art/ writing samples if you happen do work on the subject of dreaming or dreams? Or try to do something for the journal now. It can’t hurt, and you have a chance at publication online, and maybe even in hard copy!

More to come but for now I just wanted to report that I am doing great. There are clear reasons for this, and they are not what you may think or wish to think. But though it is true that “it is what it is,” whatever is now, needn’t be the same thing tomorrow. Yeah, I know, that’s completely cryptic, but I cannot say any more right now.

I will only say that things are much better today than last week, and a thousand times better than the week before. Which is what matters. That things are looking up and that I am looking up and outward at the world, not curled up, shriveled up and looking only inward.

More later.

Tuscany “Palazzo Podere”: New Art and Fewer Meds

Drawn from a photo...of a real "castle farm" -- I wonder if the owners will find me?
Drawn from a photo…of a real “castle farm” — I wonder if the owners will find me?

 

This is a photo of my large drawing of a place in Tuscany named Palazzo Podere or as translated, “Castle Farm.” I only uploaded a small file…Sorry… the details are fuzzy but them’s the breaks.

Things have been up and down, but the last two days were better than before. Largely because of an art therapy session that I found amazingly cathartic. It involved my being asked to make a “three dimensional sculpture” from a sheet of paper, a pair of scissors and some clear tape. I had no idea what to make, nor what would come from it. In fact, I dithered for a while, stymied, rolling a bit of the blue construction paper into a little tube and taping it, desultorily, waiting for inspiration. Nothing. Then suddenly it slammed me. YES! I was making, YES! a bullet for, YES, my very own Glock 9 semi-automatic handgun.

I proceeded to craft a crude gun with a bullet or two and a clip of ammo until I was finally satisfied that I had what I wanted. When I was through, Margaret, the therapist, handed me a sheet of paper on which she had written, “I am” five times. She asked me to look at my paper gun and ammo clip, at any angle I wanted to, and complete the five sentences as I wished. Well, I won’t  tell you in great detail, because my answers were were rather gross and violent, what I wrote, except to assure you that when I was through, and it took a while, she asked me, How do you feel?

I had been somewhat tearful as we talked and earlier in the week had been extremely upset and angry, but I now looked at Margaret and with a little surprised smile said, well, you know, I feel…better!

 

And I did. In fact, when I saw Dr Angela the next day, she noticed the difference immediately. Whereas before I had been nearly screaming, and not looking at her, now I could smile and make eye contact for the first time in months.

__________________________________

Progress on the medication front: Am off all Abilify. Now am dropping the Geodon, slowly. Down 40mg from 160mg. Will be dropping 40mg every 2 weeks. I think. Unless that feels too fast. If I run into trouble , I will slow it down, but Geodon never seemed to do much of anything for me…Maybe I am wrong, it could be I’m unaware of what it does. But in my experience it did little positive for me, and so it should not be too hard to get off it. I just need to be careful not to stop anything too quickly, no matter how eager I am to be off all meds.

 

I still take some small amounts of Ritalin and Xyrem for narcolepsy, though hugely reduced  now that I am not so sedated on antipsychotics and antidepressants and only take 200mg of Topamax. I dunno about that last. I may try to stop it too. But it depends on the olfactory hallucinations and whether or not my migraines are under control.

 

IN the meantime, I have been busy hiring people to stay with me 24/7 come January, in the event of a crisis, which I have to assume will happen since it always has…So long as I know people will come in and prevent a hospitalization I feel okay about it. Otherwise I would be panicking, thinking that I would ever have to go through such torture. NEVER would I let them do what they did to me at Yale or the IOL again. I will kill myself before they get their hands on me another time. But it won’t happen, because  i have aides/nurses/various people hired to help me out now in my own apartment, and they will take care of things so no hospital will be waiting in the wings to torture me. The only thing I need to be sure of is that who ever it is that is going to be with me, they MUST be on board with the NO MEDS thing. NO ONE is going to force meds  on me in my own apartment — I don’t  care who they are. If they don’t agree with that, if they have a pro-medication agenda, then they are not going to be part of my plan…

 

 

 

 

About Sacrifice and a Poem : Making Things Holy

MOSAIC

 Mosaic: a word that means from the muses, from Moses and a work of art created from broken fragments of pottery, stone or glass.
 

Even the first time, surrender was not hard,

though the grownups and mothers

with their drinks and swizzle sticks

undoubtedly thought it so when you volunteered

your only present that 10th Christmas

to a younger child who wouldn’t understand

being giftless at the tail end of a line to Santa,

nor your inherent sin in being born.

Such generosity should have stayed

between your concept-of-God and you,

but grownup admiration (you could not hope

to make your act unpublic) sullied the soap

of any generosity’s power to cleanse you.

Other atonements followed, only one

almost perfect, being perfectly anonymous

spoiled by an accomplice’s later telling.

Perfection? You never made that grade,

your terrible love for God demanding all life

from your life. No one told you, “Live a lot,”

not in words that made it matter, though

they doubtless counseled, “Live a little.”

You were always in school to be perfect,

never knowing that life is a classroom

where one learns to love flaws

by throwing bad pots, to shatter

them with careful hammer,

assembling beauty from broken things.

I do not believe I posted this poem here before. I may have but I doubt it as I was going to publish it in a print journal. Instead, I never sent it out. So instead I choose to “sacrifice” it here. (meaning: If i publish it online here I cannot do so in a print journal…so this is for you, folks!)

I am going to tell you about the child I was when I was very small, as small as I can remember. The first thing I remember about myself as a self, was…well, what do I remember? This is hard. For one thing, while I am down to only 5mg of Abilify, I still take 160mg of Geodon, but more important I still take 200mg of Topamax, an anticonvulsant that has known adverse effects on memory and cognition. Whether it actually interferes with what I can recall from childhood or not, I could not say…Perhaps ECT did that, 16 plus 5 sessions of ECT could have done a number on my brain, especially as I had active neurological Lyme disease at the time. The Lyme-literate neurologist advised strongly against ECT, but the hospital psychiatrist forced me, at least through the last 8, after I refused to go back, by getting a court order and drugging me on so much Thorazine I had no will.

Ah, but “They,” the faceless They of Authority, They say that ECT affects  only short-term memory. Well, then, I guess just being 60 years old and having gone through trauma after trauma in the present decade alone surely could have wiped out memories from a half century ago and before. Whatever is the case, I must now scour my brain to recall what I thought I could recall easily.

Marjorie M, an old friend of my father’s, related a significant story recently — about me at age 6. Given our bedroom when she stayed with our family to recuperate from surgery, while my twin sister and I camped out somewhere else in the house, Marjorie was relaxing in my twin bed, alone, when she was surprised by my little face in the doorway. “Hi, Mrs M,” she tells me I said. “Why, hello, Pammy. How are you?”  I looked at her with concern. “Are you all right, Mrs M? Are you lonely? Do you need anything?” (or something to that effect..) I am astonished that even at age 6 I knew I needed to “do this,” although I think that my mother, who disliked Marjorie intensely, was probably ignoring her and I suspect knew it even then. But Marjorie says she fell in love with me at that moment. She certainly never forgot the incident. Bless her heart…

I forgot it, likely I never knew or understood its impact. Given that I was six, I had already made the decision the year before, when Martha was born and I was five years old, that since I would never have the older sister of my own dreams, I would instead have to be the older sister I dreamed about for Martha. I made myself the promise to Martha, the day she was brought home from the hospital, that I would do everything in my power to be in Martha’s older sister the OS I would have wanted.

In all our childhood photos, until the year I turned 14 and stopped permitting photos to be taken, you see two things: I am almost always featured next to Martha, with my arms around her or somehow touching her, protective of her, and my twin sister is with the dog or otherwise occupied. Always. You might not be able to tell which twin is which from our facial features, but you can tell us apart from that. One of us is with Martha, and you know I am that twin for certain.

It is the greatest loss to me, the worst thing, the — I can only say this: I am not a quitter, but I was unable to complete that most important of assignments because of what happened to me in high school, whatever you want to call it. I either became ill, or troubled or had too many problems…whatever it was, I simply could not function well enough to do all that I promised myself (and Martha) I would do for her. I could not BE the person I needed to be, the functioning adequate teenager, in a good enough way to be a good enough older sister to her.

For instance, just take the older sister/younger sister Q and A that ought to have taken place but never did after I was 14. My own menstual periods took me by brutal surprise. In addition, I never did learn “the facts of life”  (ie sex) as we called it in those days, not for real, not so I understood them, until after college. I vaguely knew the “birds and the bees” but not really, not so I understood the fundamental mechanics of sex at a time when most teens were experimenting with relationships for real. (Not me… I went to an all-girls high school and even though it was not necessarily true for the other students, for me, sex was never on my mind, I never understood the urge or the drive, not then and frankly not ever…) Given those facts, you can see that the OS/YS tête-a-têtes about sex and dating etc just were not going to happen. I didn’t know enough, one, and two, even if I had, I was unprepared to talk about anything so intimate with anyone.

As it turned out, though, Martha had plenty of friends and soon clearly found people to talk to when I could not. Thank heavens, because if the roles had been reversed, she could have taught me plenty! Only they could not be reversed, because I was the OS and she was the YS and things had to stay that way… I think to this day, though she doesn’t say it in so many words, she misses, if not resents, losing the OS, the me she once had…She misses surely the OS promise she knew I made to her from the outset.

Oh, Martha knows it wasn’t my fault. Life is life and shit happens. But she misses me, the Pam that never quite panned out because of everything that “happened” after I turned 14, 15, 16 and then it went on and on and on…She reminded me recently that even before I was taking any medication I told her that life was a minute by minute, hour by hour, day by day struggle just to survive…and I was only 24 or 26 or…This horrified her. To this day she can scarcely bare to recall my telling her.  Or of seeing me catatonic in the State Hospital. She left crying and I think could not bear to visit again for years…

We create our reality, people tell me. Our thoughts are very powerful…If so, I created from a very young age, a very harsh reality, one where in cahoots with a punitive God, I had learned over the years I had to be selfless to the point of self-obliteration, as well as nearly mute. But not so mute as to be noticeable…because if you were noticed then you were not completely self-less. (I told you it was a harsh world…) I had to speak just enough so as to NOT be noticed, but never about me or my concerns. ONLY about others…and then listen to their problems ONLY. I had to be a pair of ears pinioned to the wall. Wear drab no-color colors, unnoticeable. Fade into the woodwork, but only in a way that was unremarkable…As soon as someone noticed that I was fading, it was evil! and I had to add just enough color to fade into the crowd anonymously yet again, self-lessly.

No wonder my handwriting almost disappeared into invisibility. (I would have willed my fingerprints away if I had been able to!) Can you imagine my mortification, and the self-mortification I had to practice when bank tellers noticed the minuscularity of my signature and made me sign checks a second time? They NOTICED my attempts to disappear, and in doing so, made me appear loud and big…which was bad. So the voices took it out on me, making demands that had to be answered and hidden in turn.

Why am I writing about these things? Because despite the pain it has caused me, I still believe in self-denial. I believe in self-lessly doing things for others, and in NOT being the center of our own universes ALL the time. I think a good bit of doing for and thinking about others in THEIR universes is good for the soul, so long as they do not abuse you. And I do not believe that others need to know everything good that we do. I do not think we need to broadcast every good deed on Facebook or to our friends so they know what good people we are! So what if it remains anonymous, or between God and you? Maybe even God doesn’t need to know it if you do something for someone else…and that someone else doesn’t need to know who did it either.

Live with  the anonymity. You can do it. You can be self-less once in a while and not die. Your self is strong enough tolerate not telling the world everything you do for others…Trust me. You do not need kudos, confirmations or smiles for everything you do. You just need to know that someone else is better off because you did something or gave away something you could have used, but decided to give it to someone else instead. You sacrificed something. Not that you gave it away because you could not use it but because someone else needed it more than you did.

Try it, a little sacrificing especially in the United States is a good thing to learn. But make it real, don’t do it falsely. Giving up time or giving away something you don’t use or have any need for is no sacrifice. Sacrifice: from the Latin, sacer, “holy” plus facio, facere, “to make.” Something is only a sacrifice, something is only made holy, if it is a real loss and a real gift at the same time.

NEW ART AND MEDS REDUCED

So she is seeing a psychiatrist....He holds her future in his hands. If he prescribes medications she could be impaired for life..
So she is seeing a psychiatrist….He holds her future in his hands. If he prescribes medications she could be impaired for life..
Gullwing MErcedes 300sl
In the Vimeo video “Poetry in Motion”, a man who dreamed all his youth of owning one of these gullwing 1955 Mercedes 300SL , drives one, everywhere. He speaks of how others trailer theirs, very carefully, but of the ultimate joy of driving his dream car…Why else own it?
The voices i hear are OUTside my head, not inside it…which makes it hard to understand that they are generated from within my brain, even though I appreciate now, at this moment, that they must be….

I am assembling my own private, so to speak, “treatment team” for recovery. This is because it turns out that to go to any facility for real no-drug no medication recovery, somewhere like Windhorse in Northampton, Massachusetts, or Cooper-Riis in NorthCarolina, you have essentially to be filthy rich. Neither place so much as returned my application email (supplication) once they knew I “only” had about — well, let’s just say that I could not afford their fees of up to $20,000 per month, and certainly not for the requisite six month program just to start with! So essentially, you have to be wealthy as Croesus in this country to get any help whatsoever to recover, or you are on your own.

Luckily a little family assistance does permit me to hire a few people to help me — which I know some people are not fortunate enough to do. So I did — I hired an art therapist this past week and I meet with her next thursday! This is something I really look forward to. While I do art daily, I do not usually express my feelings easily or spontaneously doing art. I have to think things through doing art. But i want to do it quickly and find out things or learn to let go and feel my way doing art. And I have never done art therapy, at all so I dunno even what it can offer, except that I cannot believe it won’t be helpful, esp now that I am done to 5mg Abilify as of Saturday. And no abilify at all by the following Saturday, if it turns out that I can tolerate the drop to nothing.

Now, I do take Geodon as well, so I think it will be fine. But we will see. So far so good. But I did say that I would take it more slowly if I ran into problems. Once the Abilify is out of my system, I will wait a little while, then start reducing the Geodon. No sense in waiting too long. If I have no difficulties apparent from the loss of Abilify, why wait? THEY thought i  decompensated almost immediately at Yale New Haven Hospital from having “nothing on board.” My contention is that I decompensated due to the abuse I suffered at their hands, and as a result of their megadosing me with IM Haldol, torture for anyone.

That’s about all the news I have for now. And it is getting late so I’d better go to bed.

Oh, by the way, if the pictures look a bit different, it is because they are done with markers, copic markers for the most part, and not with colored pencils….So you are noticing my use of a different medium.

Today’s Art Journal Pages:West Farms Mall: You are Here…PLUS

Near the Apple Store, sketching all day at West Farms Mall, West Hartford CT.
Near the Apple Store, sketching all day at West Farms Mall, West Hartford CT.

 

Sketch after Mary Frances Berry Phd. Ballpoint and Colored pencil (from television image)
Sketch after Mary Frances Berry Phd. Ballpoint and Colored pencil (from television image) 
Otheriwse Known as Pammy but trying to be known as Miss Wagner, so the boundaries remain professional, even if they never stay firm and strong.
Otheriwse Known as Pammy but trying to be known as Miss Wagner, so the boundaries remain professional, even if they never stay firm and strong.

 

Despite the MALFUNCTION picture above, there was nothing at all wrong with my ipad…I simply didnt understand the three finger tap function. But once i did, all was  well. And the geniuses at the Genius bar were blessed again. I left to do the drawing of the West Farms Mall, rather than waste the 25 minute drive it had taken me to get over there.

 

That said, I need to add that I did one thing this weekend that Martha, my youngest sister picked up on immediately and knew at once was the wrong call, so to speak. She is an emotional genius of the highest order, and I dunno how, but somehow wrote me a text message that gave me permission to solve the problem…

 

To make the story clear, let me explain that it has LONG been part of my ethic that if I treasure something, especially a THING, I make a practice indeed a habit of giving it away. This is in part so I do not get attached to things, and so that I am not ” allowed to have any particular beloved items” that I need too much or covet too much. A form and practice of self-denial that runs very deep and started when I was remarkably young. I won’t go longer into this practice now except to add that as I wrote in my art journal on one page, one summer a few years ago, I took my very first vacation that was not a “hospital vacation” but was instead a planned stay at a Arts and craft camp called Snow Farm up in Florence, Massachusetts, where I signed up for a metal jewelry course. I already knew how to do the basics, but what this course promised was to teach sawing and riveting and soldering of metals, something I could not do at home.

Martha, who is five years younger than I, lives very close to Snow Farm, and without her support I never would have survived my weeklong stay. Partly because it turned out that I was much too paranoid to eat in the dining room, so she supplied me with enough food to make do with “canned” that is to say mostly fresh and decent food in my single room in the sleeping quarters. Late at night I would creep down to the emptied dining room and make myself a large PB sandwich to supplement these as well, from the supplies that were left out at all hours. But except for the one time the APRN who was then the manager of Snow Farm actually came and got me for supper and the other time that Martha also went with me to eat, I made do alone…

An equal hardship, one I am less able to explain, is that during the entire weeklong course, no one in the class of mostly women, more or less my age, spoke to me. They were a chatty bunch and talked a lot among themselves, but not a person said a thing to me, except I  think one woman, towards the end of the week, offered the use of her tools or something, which became the occasion of a final breakthrough. But for the most part it was a lonely awful time.If it hadn’t been for the teacher herself, Abigail, who spent time with me (she knew my background from my application). I’d have withered from sheer isolation, both self- and other-imposed.

The final hardship was that I was very thin at the time, and using a metal saw required that one hold it against the chest wall while tightening any replacement saw bands and at other times as well. For some reason, I kept breaking my saws, which were delicate enough that if you twisted it while sawing a copper sheet, it could snap in a second. But holding the saw in a vise against my chest wall was simply impossible: It caused me exquisite physical pain, and I could not withstand the pain long enough to replace a single blade. So I had to give up learning to saw, and thus never learned to rivet either. Anything that involved the saw was simply beyond me. Either nobody observed the problem, or all decided that it was not worth coming to my aid. In any event, I was left with no alternative but to do the only thing I was able to finally do: to solder silver rings.

 

Yes, when it turned out that I could with ease hammer silver half-round sterling into a ring shape and  solder it together into a permanent ring, and no one placed a limit on how many I made (since we paid for silver materials as we went along) I simply made silver rings for the rest of the week. Then the one woman who was semi-friendly with me gave me a few sterling silver pre-made bezel cups that would hold a 3 mm cabochon, were I to obtain them. And the teacher showed me how to solder the bezel cup onto a couple of my rings finally as well, (I could never learn to make my own bezel cups because that involved sawing…)

I left Snow Farm with about ten rings, two of which had soldered-on bezel cups. Some were big enough for men, the others were varying women’s sizes, but all were 100% sterling silver. None were anything mind you but amateurish, but that mattered little to me or anyone I gave one to. No one knew the difference, and if I did, it ceased to matter. I ordered little cabochons of grade A lapis lazuli, the lovely blue stone that is so famous, and managed to secure two of them into the two rings with bezel cups on them in a fairly decent if untutored manner (no adhesive used, that much I was proud of).

 

But of course, one of these lapis lazuli rings was in due course given away to a friend who was on and off not a friend. and who verbally abused me in such fashion that it was from her that I learned the awful language and names that I called the nurses and aides at Natchaug and Yale. (I hate the fact that I even have the c__nt word in my working vocabulary. I never did before this friend who is no friend of mine used it on me…But once heard as an name-calling term of verbal abuse, it became “valid,” it became part of my language…much as I wish it had never. And now I confess that when enraged at the people at the hospital, but ONLY then, I call them c––nts and variants on the terms rather freely, because I know what a terribly word it is and what effect it will have on them. (Chip my brother roared with laughter when I told him I called the single nurse restrained me for walking away from the quiet room at the IOL a “snarky little c––nt” and praised me for being able to laugh too. but in truth  I wish I did not even have the word in my working vocabulary at all. I would prefer a lack of insults to use on people to being able to hurt anyone with this word…)

 

Now this “friend” is out of my life and I have the single ring left,..my single remaining treasure from that troublesome perfect vacation.

 

But what happened at the end of that vacation? Well, the last night, we were told to make something for the camp auction and so I brought earring making equipment and starting making a slew of those, and that, plus the fact that I’d brought over  a copy of DIVIDED MINDS, finally just to introduce myself (I think the woman who had given me the bezel cups had asked me a question and elicited the fact that I had written two books…wanted to see them). Well, this was what finally broke the ice. And it did it in a major way. People were really interested, and curious. And they now asked me questions and seemed less scared to talk with me, as if the book’s subject matter somehow explained “everything.” I dunno…Maybe it did and maybe it didn’t. But the last day there , with the auction and the final dinner went fine. and I would say that I “love Snow Farm” despite everything.

 

Which is why I treasure that one remaining lapis  lazuli ring. It means that I actually made something from a situation that could have been unmitigated disaster. I made lemonade from lemons, and I survived a vacation all on my own. SO when I managed to practically beg Martha, my compassionate genius of a younger sister to take this ring from my finger…she was dubious to begin with. For one thing, she has her own two important rings. One is her own gift to herself for surviving Breast Cancer…and it is her most important ring. But I practically made her take my ring from me. I think I have done this to her before…And she didn’t want to take it then either….She KNOWS things, this wonderful sister of mine, and either it is in part that she has these other rings of her own, or that she has inklings about my propensity to give my treasures away to others (I love)  she is not and has not been a willing taker of my ring  on either occasion.

 

What a good egg, This night I received an email from her saying she wanted to “trade it back to me” or at least have each of us wear it so she wasn’t taking it from me…But she knew, she knew. I dunno how, but something told her that it was not just ANY ring I made. God knows I have made her things,  and she had accepted them. So she isn’t just refusing to take anything I made. no. I made the papier mache hummingbird JUST FOR MARTHA after all. And in point of fact she knew that I didnt want to part with Christobelle or the Using Klimt collages, but felt okay about taking them as long as she paid me the full price that I was asking…. (Actually I feel like shit, not just giving the collages to her! But that is another story.)

 

But the ring, oh the ring is so different. HOW DID SHE KNOW that the ring was different? It is not that my offer was false. I wanted her to have my treasure. I did. I loved giving it to her. It is just that I also know that I missed the ring, and wanted also to have it too. And in that sense alone I regretted my impulsivity. And the need to impoverish myself and deprive myself just because i had to. WHY? WHy am I not allowed to keep my ring, symbol of so much? Would it kill me to keep it? Would it be such a terrible mortal sin to allow me to keep my ONE treasure? It isn’t that precious, after all. The solder seam is visible on the bottom  not under the bezel and it is a pretty shoddy piece of handmade jewelry. Not worth a nickle to anyone, in reality. Even the lapis cost me all of a dollar or two. So why does it cost me so much emotionally to keep it??????

 

Martha gets it, though. She really did and does. She KNOWS. She knows the real value of the ring is not the monetary value, but what it means to me. And that is why she is uncomfortable keeping it. The ring aint worth shit, not qua ring. It is only worth something as memory and as symbol and then only to me…and to Martha by extension and because of her depth of understanding.

Martha, if you read this, i hope I understood you correctly.  You certainly got me on the dime. Thank you from the depths of even my impoverished dried up little heart for understanding. You deserve a ring far better than any crappy lapis ring I could ever make…You are a sister beyond dreams. Thank you…I really love you more than I can say.

 

 

Two Pages from my Art Journal: pain and mess are facts of my life

Piriformis, the muscle you never heard of, can be a real pain in the butt...literally, but at least the problem is neuromuscular, and not in the bones. It turns out to be related to all the forced Haldol injections they gave me at Yale, and something as well to do with this deep piriformis muscle and the sciatic nerve...Dont understand it all, but it all adds up to a huge amount of excruciating Pain with a capital P!
Piriformis, the muscle you never heard of, can be a real pain in the butt…literally, but at least the problem is neuromuscular, and not in the bones. It turns out to be related to all the forced Haldol injections they gave me at Yale, and something as well to do with this deep piriformis muscle and the sciatic nerve…Dont understand it all, but it all adds up to a huge amount of excruciating Pain with a capital P!

I ended up at the local non-hartford ER on Monday/Tuesday morning, in the very wee hours, in so much exquisite agony i could not move off the chair i sleep on.

 

What do you expect? I sleep in the same chair i eat and read and draw in mostly...and now i am imprisioned in it in pain, why shouldnt i live in filth?  It isnt actually the dirt or not that bothers me, but the constant chaos...i would prefer orderliness, but cannot keep things in any state resembling it, so chaos reigns!  I do not worship the great god Chaos, but no one could guess that from the constant state of affairs chez moi...the drawing i did in my journal doesnt even begin to depict the truth. In fact, i dont know how to do so. It is incredibly difficult to draw the mess and chaos and disorganization of my room. One must define something toi draw it, so by necessity you bring an order to the room in culling it of unnecessaries that it does not have in the realness of my unbeautified life. Pretty as a picture my room is not!
What do you expect? I sleep in the same chair i eat and read and draw in mostly…and now i am imprisoned in it in pain, why shouldnt i live in filth? It isnt actually the dirt or not that bothers me, but the constant chaos…i would prefer orderliness, but cannot keep things in any state resembling it, so chaos reigns! I do not worship the great god Chaos, but no one could guess that from the constant state of affairs chez moi…the drawing i did in my journal doesnt even begin to depict the truth. In fact, i dont know how to do so. It is incredibly difficult to draw the mess and chaos and disorganization of my room. One must define something to draw it, so by necessity you bring an order to the room in culling it of unnecessaries that it does not have in the realness of my unbeautified life. Pretty as a picture my room is not!

 

One thing you notice in this definitely unprofessional picture is the presence of a single crutch. I hated being at the ER but if I hadn’t called 911 (after pulling my emergency cord and wondering if anyone would ever come to my door…and finding out that someone had actually called 911 for me after the loud buzzer over my door had sounded for at least 1/2 hour…). When I hear someone’s emergency buzzer, I always knock and try to go to the person, find out if I can help them in any way. i dunno who called 911, but why they couldn’t at least let me know they were doing so I dunno. i felt so alone all night, and then at the ER. it was almost worse, because of course I  was treated like an hysterical psychiatric patient largely, and ignored. Truth to tell, my hip pain was not going to kill me, and apparently the testicular pain of the young man in the other part of the cubicle, could have killed him (so says Dr C, but according to her it would kill via “shock” so she means because of the degree of pain…So I am skeptical. I think the reason he was getting so much attention was because “Everyone knows” that testicle pain is horrendously awful and  shockingly painful…”everyone” because of course MEN have experineced it and let us all know how bad it is. Women have experienced childbirth tearing them literally apart for eons but no one goes on and on about how that pain needs to be attended to at all costs. No we just let them scream…SO, ditto me versus the young man with a testicle that did not apparentlhy need surgery but who was, I admit, the subject of a sadistic surgeon’s ministrations, and manipulations, even as the man denied that the young man needed his help. I mean, why stand there, holding a guy’s twisted ball in your hand, manipulating it in such a fashion that you kmow you are causing breathtaking agony, everyone who hears the sucked-in choked-off breaths of the patient knows it, why do that, what are you odoing? when you then in the next breath announce that this testicle is FINE, nothing that needs YOUR attention as a surgeon, in fact, you cannot understand why it is still causing the man so much apparent pain. But it is…The young man is nearly comatose with pain, and the surgeon doesnt’ even apologize. Only says, Well, you are fine, nothing here that needs me. I will check in with you later, but you are not a surgical candidate as far as I am concerned so you are none of my business.

 

But what I was saying was, sympathetic as I may have been with respects to the  doctor’s sadism and disregard for all human feeeling. Nevertheless, it was apparent that the entire ER had sympathy for testicle pain, and youth, little to none for hip agony in a 60 year old bag of a woman with scars on her legs and arms and face…It was a matter of appearance and what and who was appealing, and I was nothing of the sort. Who did they want to root for or give a damn about? I was just a title 19 patient with nothing to offer, and since I had brought nothing but a key to get back into my aprt with  me, I could not prove otherwise. Could I? Nothing to tell them I was worth anything but scorn and disgust, which they gave freely.

 

I knew in the end, that is., after 12 hours and very little had been done past a CT scan that showed piriformis inflammation, that I had to prove that I could function well enough to be discharged from the ER. I knew it would involved exquisite agony but it had to be done or they would keep me in the hospital because they would claim I could not function independently. SOMEHOW I had to prove I could get my own jeans back on, and dress myself. I knew that if I could do that they could not keep me, and I was desperate not to have to stay there any longer than I had to…which meant in practice that I wanted to leave ASAP.

It cost me more pain that I can ever express. I literally had to suck in my breath and flrce myself to “break my own hip” or feel as if I were doing so” in order to put my leg inside the pants and then manage to pull them up and zip the zipper. But I did it. SOmehow I did it. It felt as if I were literally stabbing myself in the abdomen each time I forced myself to do any abrupt movement like putting my right foot into the pants leg and pulling them up. But it would do not good to go slowly. A slow agony would never do and would only prolong something I could never tolerate. So I did the “white hot poker routine” of forcing myself to make abrupt changes in position and get things over with. And I managed to get dressed and eventually I was discharged and my dear friend Josephine agreed to come pick me up after she was through with her last housecleaning job, which was just then…

 

But where am I going with all this? Piriformis Syndrome, you can look that up. It is all very mysterious and not very common. But curable or at least temporary usually and treatable. So I am not dying and not even very ill, though the pain is mentionable! All I have been writing about, basically, is the pain, the dismissive attitude, and this, what finally transpired: I saw my doctor’s office’s APRN, Sara, who is very wonderful and while young doesn’t make me feel old and despised. She put me on a difficult drug to take but one that promises quick pain relief, if I can tolerate it: prednisone. And Soma for a muscle relaxant, which may or may not work. I will start the former tomorrow morning and try the latter as soon as I finish this blog post and can justify inducing sleepiness. She did not minimize anything, and I felt taken at my word and seriously. Neither as if things were being exaggerated for my benefit nor dismissed for the same reason.

 

I apologize that this blog post has been so boring. I am halfblind with sleepiness, because i have been up since 2:30AM, one, and two, the hospital lost my two pairs of glasses with prisms in them so I am using glasses that do not prevent double vision at the moment. Trying simply to see the screen and the keyboard is an effort that defeats me more often than not. You can imagine the effort to be eloquent or anything else is beyond the beyond.

 

But mostly I think I am just plain overtired, which makes it triply difficult to focus my eyes on any one object, let only make doubled images fuse into a single image. So I will stop for now. Take the Soma and go to bed. Thanks for your forebearance. If I promised an email to anyone, I will try to get to to. Remind me if you want to. I meet with my siblings Martha and Philip tomorrow so I may be busy for ao while but I hope to be in less pain and more able to get back to people who have written me about things.

 

Ciao! Cheers! Shalom!

How to make a fine point ipad stylus

This is a video that replaces my old post of instructions and photos. Hope it meets with approval from those searching for it…

In 4-point Restraints for Disobeying the Rules at the Institute of Living, 2013

Look at the Caption and the Sign on the wall, both are important! This really happened...
PSYCHIATRIC PATIENT IN FOUR-POINT RESTRAINTS
A study in perspective...The tin foil on the wall didn't come out as well as I wanted it to, but the rest is okay..I hope...
A study in perspective…The tin foil on the wall didn’t come out as well as I wanted it to, but the rest is okay..I hope…
Study in pencil of plastic container of doodads
Study in pencil of plastic container of doodads
Study in pencil of plastic container of doodads
Study in pencil of plastic container of doodads
Bearing the Elephants is a spontaneous inkblot drawing...The black spots were inkssplotches that stimulated the drawing.
Bearing the Elephants is a spontaneous drawing…The black spots were inksplotches that stimulated the drawing. I think if you click on the drawing you may get more information…

So that is all I have to post today as I have too many errands to do before my meeting at the Institute of Living. Wish me luck everyone! I don’t expect much from them, I must say. Not much at all, after all, no one is going to acknowledge any wrong doing, much less apologize or even want to improve the situation. Not as at Natchaug where at least they gave lipservice, though it turned out to be lip service ONLY…to wanting to make Natchaug a better place. (Yeah, it turns out they — THe MFs at Natchaug Hospital who said they wanted me to speak — were just stringing me along, never did have any intentions of having me back to speak to the Medical staff, just mollifying and mollycoddling me as I sort of thought they were…Dr Deborah Weidner, the Natchaug Hospital CMO, is a politician as much as a psychiatrist and has to be, right? NO…but that is another subject altogether. I won’t be going back to Natchaug ever again either , not as a patient, as was understood. They don’t have a doctor who will see me, so why would I care about helping them improve? I did care. I do care about all their other patients and I care about their Mental Health Workers, who were the one group that really did do their jobs…and most of the nurses too…But the problem is the Admin of Natchaug doesn’t care, and the senior nursing staff is burned out and problematic…But I am not going to go there. Because THEY DON’T CARE that I care!)

Anyhow, as I said, I have errands to do and I guess I should maybe wash before I go to the IOL, seeing as how I haven’t done so since my trip to NC…It might be  a good idea, though a real drag. I hate it…I hate the very idea of getting under the running water and getting wet is such a hassle. But gotta keep up the appearance for today! After that, who gives a damn…

Okay, so thats it for now. I’m outta here. Thanks for all the FB support, guys. I will let you know how it goes.

Migraine Continues….Fifth Day…I Feel Desolate.

20121223-000048.jpg As good a headache picture as any…

 

Sorry…I do get some breaks with Imitrex, but not complete and not for long. Then the pain returns in full and I cannot take another for 24 hours. Or at least 12 hours if I get desperate. I try to wait 24 hours though because I do not want to get a rebound headache.

 

Anyhow, I am still slowly trying to gather 11 blogs for the rest of the Liebster Award, so I haven’t forgotten that obligation. It is still in the offing, along with everything else in my life that gets put in abeyance when I get a monster migraine. Okay. It’s back to lying down and being still. Thanks for your support everyone. I’ll be back soon.

Let Me Draw Your Home Portrait

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Have a MONSTER Migraine…

in the midst of a heat wave, with a broken air conditioner, which is why I haven’t finished the Liebster Award or anything else. All in due time, all in due time. Sorry but that is how it goes. The best I can do is post an unfinished painting of mine, which has nothing to do with anything but might partly express a migraine: a black widow spider gripping a brain (though there is no expression of pain on this face). Note that of course the Black Widow has a Biohazard sign on her back or belly instead of the usual hourglass. I was going somewhere with that, but the black paint took so long to dry that I got distracted and finally wiped it off and now it is sitting a shadow of its former self on my easel wondering what I am going to do with it now!

 

IMG_1066

In this godforsaken heat I have made myself a cup of coffee thinking maybe that would help my head, but now I cannot get myself to drink it. So I sit, without airconditioning, in the heat, with this terrible headache, feeling like crap and I really shouldn’t write any more lest I write things I will regret later. So, I will only bid you a pained TTFN (Ta ta for now).

 

Therapy Puppets: An Art project

Traumatized Tiffany
Although all the puppets/dolls are handmade, and each takes four hours to complete from start to finish, Tiffany is the only one that is clearly in trouble. She has a black eye and is screaming in pain or outrage or something…She is also the only doll that I decided to leave unreinforced, though I may change my mind after I finish the others. For now, though, I have left her in the simple form, frail and fragile, utterly vulnerable…though for all that, it is only an illusion. These doll puppets aren’t easily breakable. You would have a harder time than you think, trying to tear the heads off.
Beatnik Bob- therapy puppet/doll from 4-6 inches high, like the others.
Therapy Puppet, Bob is completely handmade with a pliable bending body and an exquisite, handmade clay head with hair of embroidery thread.
 Beatnik Bobby, another view
Beatnik Bobby completely handmade with a pliable bending body and an exquisite, handmade clay head with hair of embroidery thread.
JailHouse Jummy
Jimmy is also completely handmade with a pliable bending body and an exquisite, handmade clay head with hair of embroidery thread. I have him fighting his way out of a jail made from a bingo counter bin. (Knew that would come in handy one day!)
Baseball Willy
I call this one BaseBall Willy only because of his cap, but he could be doing anything in his whites. You figure it out for yourself, because that is the point! Willy is also completely handmade with a pliable bending body and instead of hair, he sports a clay baseball cap.
TigerWoman
What else could I call her in such get up? I see this one as confident, even too confident…that’s the story I give her. What do you see in her? completely Like all the others she is handmade with a pliable bending body and an exquisite, handcrafted clay head with hair of embroidery thread.
What do you see in her?
She looks haunted but strolls the avenue like she owns it nonetheless…Or not? Tigerwoman is completely handmade with a pliable bending body and an exquisite, handcrafted clay head with hair of embroidery thread.
A Band of Beatniks
Cute, no? A Band of Beatnik therapy puppets, all handmade, each one takes about four ours to make, from start to finish. even each drum takes at least two hours to make.
Miss Whatsit
Although I did make this figurine female, as opposed to the more clearly male one, that is the only characteristic I gave her. Otherwise, she is supposed to be “blank.”
Female and Male Whatsits
The female has pink lips and the male has brown lips…Otherwise there is little difference. Skin tone is neutral and no race is specified.
He whatsit
Brown lips but neutral skin color, and no noticeable emotions or characteristics. completely handmade with a pliable bending body and a clay head, with recognizable but blank features.
Leather Drum
The drum was made from a piece of a roll that came inside a tube of plastic wrap. I cut off about an inch. Then I cut apart a used leather pocket book I bought at a thrift store and with a piece glued a small piece around the once inch round. Then I tucked the flaps inside on both ends. Finally I sewed a round piece with a running stitch, using a sewing awl, and after I attached it with glue to one side of the drum, pulled the black cord together like a drawstring. I glued a tiny bead to either cord end and voila, a drum for the beatniks to play.

 

 

I have created these small creatures, every one of them individually handmade, for use by therapists in counseling. They range from about 4 inches to about 6 or 7 inches high. I started with Beatnik Bob, just for fun, but when I actually found myself comforting the little green girl-like figure with the black eye, which I call for shorthand, Traumatized Tiffany, it was a revelation. It is hard not to want to play with them, in fact. That is what friends tell me when they see them. Weird, because we are all way way too old for dolls and playing with toys, and yet these figurines seem to elicit something in us that made me think therapists could use them in their work.

 

If any therapists or psychiatrists out there are interested in obtaining some of these creatures, please contact me to discuss fees and shipping. I can make them to specification sort of, but after that, each piece is unique and cannot be replicated. Let me know if you prefer characters or the hairless, non-specific Whatsit figures.

 

Sunshine Story of Schizophrenia Recovery…plus

When I saw at the end of this film, part four, before the depressing note that stated all that Indian law might not permit Reshma to do in her life, how she was making a living by painting, all I could think was, WOW! Go for it! At the very least, she is not being held back by the strictures of disability law and Medicare and Medicaid earning limits, or being forced into a permanent sick role because of same, simply in order to have a roof over her head and food to eat. No, she was lucky enough to have a family that both really and truly took care of her in her worst moments and fought for her in the best sense of the word, and also one that let her go when she needed to fly free. Most of us are not so lucky…alas. I think the support that she got all through her illness played an enormous role in her recovery, frankly. And I dunno how many of us get that sort of community or family support, but I wager that it is not many. I certainly did not. I wish I had, but it was very much to the contrary. Instead of support, I was abandoned entirely, both financially and emotionally. Left high and dry, to such an extent that people who met my parents after the break, never knew I existed, not for thirty-five to forty years. Some are only just learning of my existence now, as they meet me when I visit my mother. They didn’t even know or understand that all along Lynnie had a twin!

But I do not wish to dwell on that, except to say that things did not have to be as they were. And we do not have to live as second class rejects in society, except insofar as we accept that role.  And take it on, along with the disability status and payments that we are told we should apply for at the first psychotic break. I disagree. If a person has a work history (and history is the single best predictor of the future, if anything can predict it) and has shown that he or she can hold a job, then why after a psychotic break should they be told they will never work again and that they should apply for social security disability? Disability signifies Permanent and total disability, that’s what it is for. You are not supposed to get better, and it’s meant to be “for good.” No, it is not impossible to get off SSDI and you can in fact earn your way off it. But how many people do? Not a single person I know who ever obtained SSDI payments ever got off it or ever even tried to do so. The best they did was earn just below the legal limits of what one can earn before they  start counting against your disabled status. Which is to say, they worked, yes, but only a little, and only to the extent that it never threatened their standing as a disabled person.

What a crappy system. Someone a few months back when I was in the hospital asked me why I was so angry at the System, and why I counseled anyone under 50 not to go for disability…and this is why. Because it paralyzes a person into doing nothing with his or her life, it keeps them mired in permanent poverty, and it encourages lethargy and breeds depression and recurrent illness. I believe it does NOBODY any good. Frankly. True enough, I cannot say that I am not grateful as hell that I have had a monthly income for all my adult life, as I have never been able to work an 8-hour day regular job. But if, instead, there had been creative rehab or job counseling and creating, maybe someone would have discovered my artistic abilities earlier in my life and got me going, and using them earlier in a more productive and income-earning capacity.

I was never, and never claimed to be, unable to do anything at all. I simply could not follow a routine of any kind or go into an office or workplace from 9-5pm. Since that made me unemployable in their lights, I was “disabled” and put on the SSI and SSDI rolls. But in truth, while it guaranteed me an income, it also sidelined me for life, because I didn’t have to do anything to survive or even to get ahead. And in fact I was not allowed to get ahead or I would have lost the very disabled status that I now needed simply to qualify for housing and food. It was a terrible catch 22 situation that only perpetuated itself once I was caught in it. I could never get out of it once I accepted the first check…

And it only got worse when I moved into the cushiness of subsidized housing. Now, not only can I not move (it is HUD housing not Section 8 so it isn’t even portable) but I am “used” to a piddling rent of 1/3 of my piddling income. I have stopped knowing how to scrimp and save and live on pennies a day…because I do not have to. Everything is guaranteed here. Everything is safe. But I am suffocating, because I have no life, and no prospects for any change or growth or movement because at age 60 my life is at an end…I will live and die in these measly 2 rooms, living on SSDI and SSI, earning nothing, doing art and storing it away for nothing and no one…What good is that?

That, my friend who wanted to know why disability is such a bad deal, is why I counsel anyone who is not close to retirement not to go the disability route, not unless you want to do nothing and live in poverty for the rest of your life, and are content with a life of watching TV and a strict budget, using food-stamps and coupons. Because it will come down to that, that is, if you have a TV. And lucky you if you have a car and can afford to keep it on the road….If not, think about whether or not you can get rides, because the bus can be a drag when it is raining or snowing and you have a lot of groceries to carry. You better keep the car in tip top shape in any event, because you won’t be buying another anytime soon on disability from Social Security…I dunno about you, but no one I know gets much more than $1000.00/month from SSDI and usually we get hundreds of dollars less than that. One car repair bill can rip a monthly check to shreds.

I dunno what most wage-earning people think a life on disability is like, but it isn’t a cushy life of luxury,  not at all. I haven’t bought or been able to buy new clothes in nearly ten years. (I wouldn’t want to anyway, because I like to buy used clothing and not generate new carbon, but do you really think I could afford on my SSDI check the price of any clothing except Walmart’s, that abomination of a store?) I cannot even afford to get food at Stop and Shop, let alone new clothing anywhere. I buy literally everything used, at GOodwill, or I barter or get things free through Freecycle. Or I do without. The only new purchases I make are art supplies, when I cannot get them at tag sales, or through other outlets. And I do not replace my erstwhile beloved pet Eemie, because I know I cannot afford a cat. You make choices in this world. If you choose to go on disability, I believe they should tell you precisely what sort of life you are choosing. Or give you options so that disability is only one of several equally feasible ones. It ought not be simply: go back to work at the same job, at the same level of stress, or go on disability. That is stupid, especially if one has been psychotic. But it also ought not be, You have been psychotic, and we are certain it will recur, so you will never be able to work again.  That is double nonsense. NO ONE can predict the future, or tell a single soul that a psychosis will or will not recur. Only time will tell, and predicting a good prognosis has been shown to pay off with better outcomes than telling a patient that the future looks dire.

Okay, enough for now. I hope I haven’t been too oldy and moldy-sounding. I’m just very discouraged about my own limited and stagnating life. I do not feel as old as the system is making me behave. I could have a good life for the next two decades or more and maybe even a career. After all, Grandma Moses didn’t start painting till she was much older than my mere 60 years, and she had a long painting life ahead of her. No one told her she should just hide her head in the sand and wait to die. Or if they did, she ignored them and went ahead and  painted and painted. I won’t give up on art, but I am frustrated and feel utterly stymied by a system that has clipped and cauterized my wings.

Finally, this is the large Turtle that I owe Tim, as it looks at present. I am going at it very slowly but surely.

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