Not sure why link is not working but if you click on it you will get to Disability Arts Onljne, from there go to magazine, then click on newest reviews. The second one in, so far, should be about O-rings and Cathode Rays, that is to say, the review.
i will try posting this address which may copy and paste better than the link does.
Carolyn and Pamela, after she put on 60lbs on Zyprexa (olanzapine)
“The thing about twins is they invite comparison. Even though they may look identical, one usually has the edge — a little more confidence, a quicker smile, perhaps a bit more talent.
As babies and little girls, Pam Wagner and Carolyn Spiro were like that. They danced and acted and held promise that delighted their parents. They loved it when people mixed them up. They were a tight club of two.
And then in adolescence, Pam, the one with the edge, lost touch with her own mind. Life became confusing and the twins’s lives took separate paths, diverging and then intersecting repeatedly, as they once again do now. Pam is a poet and Carolyn a psychiatrist. In midlife, they’ve come together to write a book, to try to capture their story for the benefit of others, and also for themselves.
Their story is a tale of the inseparable bond of sisters, of twins, and their struggle when their lives became anything but identical.
• • •
When you enter Pam’s apartment you can’t escape the photo test: two adorable baby girls, ribbons in downy hair, one gazing intently, the other head-tilted, tentative. Both bright-eyed, identical. Which is which? Which is Pammy and which is her twin, Lynnie?
You can’t tell. Is that thoughtful tilt a Lynnie trait? The more focused expression Pammy’s? Impossible to say, so you guess and you guess wrong.
And you wonder, was the die already cast at so young an age? Were they already – though indistinguishable on the outside – so very divergent on the inside? The seed of illness, perhaps, already planted; the roles of caretaker and cared-for so early ordained. You try to reconcile these photos – these identical babies and later, mirror-image school girls – with all you see a half-century later.
So very different are they now. How do they live with this, the undoing of their twinhood? And, how has their family, so accomplished and talented, coped with the slap of fate? That one became psychotic, the other a psychiatrist. Pam catches you staring at the beguiling babies. “You know,” she says, “I was well once.”’
click on link above to find rest of story, written after a years long series of interviews, both at home and in hospitals.
Okay, herés the thing. Some 40 years ago I was sexually assaulted while I was on duty at the University of Connecticut’s Poison Information Center, in 1978 (when it was still called that…). I remember without a single shred of doubt who the man was, a dental student with whom I had been friendly when I attended the medical school at UConn. That DI – his initials- would recall this too, I believe is the case, because I believed him when he said he thought my “No!” meant that I really wanted sex with him. And we talked about his aggression against me afterwards.
But I also know that the security guard who heard my crying out and my struggles behind the closed locked door of the PIC and knocked to ask if I was all right’ definitely did not believe me when I opened the door and told him I was okay…yes, DI had stopped his assault when the guard knocked on the door, and he did not recommence anything after I Assured the guard that all was well. He got the point, that I was not interested in the sex he had tried to force on me…
But I was also not okay, certainly not with DI’s behavior. I told the guard all was well because I felt to blame, I felt guilty for being female and “bringing DIs attack on myself.” Not guilty for anything I did, but because of my body, because my body was a woman’s body and so that in and of itself made me “seductive”…I felt I deserved what i got.
This sexual assault happened, and I know it and who the perpetrator was without a shadow of any doubt and I have always remembered it. But could I prove it to anyone? I did mention it, later but not immediately. I had no female friends close enough to trust with my shame…but I did speak of it to several people over the years, whether or not they remember my doing so. I played down the attack as “date rape” rather than a “real attack” because I had been taught that attempted rape by a friend was somehow “less serious” than rape or attempted rape by a stranger…Let that sink in, please.
i do not know precisely what became of DI nor what sort of person he became after the event I describe, but I have always assumed and hoped that it was, as they say, a one-off Incident and Was not repeated. I assumed and hoped that DI learned from my reaction that No means No. and that he became a better person for knowing this. I gave him credit for apologizing or at least explaining why he attacked me…and I gave him credit for the ability to change and never do such a thing again.
So I KNOW that a woman like Christine Blasey ford would remember such an attack in detail and that her attacker esp if stumbling falling down drunk would have every motivation not to…
BUT I must say I did NOT believe Ford’s tearful voice or her tears. I found them utterly fake and rehearsed and it irked me no end. How disgusting that after nearly 40 years she felt it necessary to pretend to be afraid and to fake tears in her voice, high thin and fake fake fake…why would she believe this? Is a woman’s recounting of an assault only credible if accompanied by tears? How disgusting if so. But while I believe her story, i do not believe the tears were real and I found that just as disgraceful, the demands by Democrats that she put on such a fake tearful voice just to convince them of her credibility? Shameful that she could not trust her own words to be comvincing and all those senators and newscasters that fawned and cooed over her tearful voice are the ones who are guilty, forcing her to pretend to be overcome with emotions just in order to be believed that what happened did in fact happen.
I knew we were stupid enough to select DJT, or to allow him to steal the selection…because we permitted the Supreme Court to select GWB too, then cowered and (also laughed at his willful ignorance for 8 years…) kowtowed …but Trump is only our just desserts, imho
I have been able to speak now for at least a month, but before that there were four months of what I can only call subconsciously self-imposed silence. Not “selective mutism” because I did not speak at all. There does not seem to be any term for this intermittent affliction, when I cannot speak for long periods of time, but as my poem says, “Nothing locks my lips or seals my tongue” — a paraphrase I fear because I do not recall the exact words.
I would write more, but I have no time this morning. I post this small, 3.5″ by 2.5″ drawing because of Sue B’s comment on my most recent post…as it most eloquently I think answers her question. Whatever the reason for my muteness, I do not consciously choose to go silent. It simply happens, with a bang, so to speak.
This muteness can lift, I have found, with music, with singing, and people encouraging me to sing…and then to sing-talk my words, until finally I “forget” and simply end up speaking.
Here is the poem I wrote that expresses some of htis, It can be found in my newest book, LEARNING TO SEE IN THREE DIMENSIONS, available on Amazon and through any bookstore.
I haven’t spoken out loud for many weeks,
bullied by “voices” to a frightened into myself silence.
Still, what does “speechless” mean
in these days of text-to-speech software,
with its choice of Vikki or Samantha or Victoria voices,
especially when I’m possessed of a blog and writing fluency
enough to speak my mind to my heart’s content?
Even so, being mute is not a manner of speaking.
Yet I tell you I cantalk. Nothing physical impedes
my tongue, or locks my lips
except my brain’s hallucinated snarls,
Jerry Mahoney and Charlie McCarthy thrown
into surrounding shadows
ordering up this stoppage, blockage, blockade.
Now, like Stevens’ fire-fangled bird at the end of the mind
feathered unlucky, tarred, locked in golden cage
my voice remains only a memento
I wanted to say, but could not get out,
I couldn’t get it out, I could not get it out…
*In the Greek myth, Philomela is raped and has her tongue cut out by Tereus, the husband of her sister Procne. Rendered mute, Philomela weaves a tapestry detailing the crime to inform her sister, who, enraged, takes revenge on Tereus. At the end of the story, both Procne and Philomela are transformed into birds. In some versions of this story, Philomela turns into a female nightingale, while in others she becomes a swallow. However, neither of these birds can sing.
*Jerry Mahoney and Charlie McCarthy are two famous American ventriloquists’ dummies
who may be sitting as I am
in a green recliner with a cup of tea
staring out through the porch
to a darkened streetlamp outside the diner,
with a book in her lap, mine, I hope
the only one I feel I should have to mention
if I mention a book in a poem I write;
to the reader, the nitpicker, the one
who may be wondering why
on p. 47 there are two ands, one
right after another, and whose fault that is;
and to the reader, who may be tired
after a long ride home on the bus
after dark and a meal not worth mentioning
who picks up my book but finds his eyes
closing before he has opened the cover,
I say: Forgive me
I am only a writer sitting in a green recliner
with a cup of tea, I can’t explain
those two ands or the mysterious
streetlamp or warm the feet of a tired
reader in his bed. I can only put music on
and tell him stories to make movies
turn in his head, to let him wake
with the sudden understanding that poetry
may be all it takes to make a life—
well, my life at any rate, and maybe his,
and maybe the nitpicker’s and yours, too,
staring through the porch to the streetlamp
where what happens so mysteriously is poetry—
and the whole night is wrapped
in the words spoken by two strangers
meeting there, or not spoken, which is poetry too,
and all of us who listen are waiting
for the music of what is to happen.
(Last line, thanks to Helen Vendler)
Mosaic: a word that means from the muses, from Moses
and a work of art created from broken fragments of pottery,
stone or glass.
Even the first time, surrender was not hard,
though the grownups and mothers
with their drinks and swizzle sticks
undoubtedly thought it so when you volunteered
your only present that 10th Christmas
to a younger child who wouldn’t understand
being giftless at the tail end of a line to Santa,
nor your inherent sin in being born.
Such generosity should have stayed
between your concept-of-God and you,
but grownup admiration (you could not hope
to make your act unpublic) sullied the soap
of any generosity’s power to cleanse you.
Other atonements followed, only one
almost perfect, being perfectly anonymous
spoiled by an accomplice’s later telling.
Perfection? You never made that grade,
your terrible love for God demanding all life
from your life. No one told you, “Live a lot,”
not in words that made it matter, though
they doubtless counseled, “Live a little.”
You were always in school to be perfect,
never knowing that life is a classroom
where one learns to love flaws
by throwing bad pots, to shatter
them with careful hammer,
assembling beauty from broken things.
FORGETTING TO REMEMBER
Multiples: former shorthand for people diagnosed
with multiple personality disorder, believed to arise
from early sexual trauma and abuse; now considered
a dissociative disorder.
Two suicides and such a multitude of multiples
wrung from their imagination the year I was there
by student psychologists eager to make names for themselves,
the halfway facility would be shut down for good the next.
But not before seeds of uncertain certainties were sown:
repressed memories miraculously recovered from the abyss,
of incests, sodomies, satanic abuses, so even my stalwart insistence
on a happy-go-not-so-unlucky childhood
became stained by the sepia of doubt:
had I really escaped such clutches?
Knowing memory’s foibles, it’s hard to trust
what my sister tells me was true: that there really were
neighborhood “Bad Boys” and a shack in the woods
where they kept a stash of comic books and pin-up calendars,
the price to read there all afternoon if you were a girl
a feel, that I’m not wrong to believe I read my fill
of “Archie” and “Prince Valiant” and “Peanuts” inside.
Though I had to find my own way out afterwards
after they’d gone, taking their comics with them,
leaving just June, now unpinned from the wall
in her tiny shorts, the shine of her raspberry lips
pouting next to a tractor, I recall only
dry motes falling through the last rays
of sun, the smoky smell of sawdust and dust,
and grit under my bare feet, my trembling relief,
as I studied a stroll through the back door at home,
perhaps worse for the wear but on time for supper
so nobody questioned the dirt in my hair.
Excuse the poor video quality here though the sound is fine. Not sure whether using the “selfie mode” on my iPhone made the video poor or what?? Anyone have suggestions? Anyhow I would love reactions to my reading below….(Just nothing obvious on how bad the vid quality is. I ALREADY know this! By the way, I made this for David H. and his project in the U.K. so that is why I referred to the Brits in it…
“In India when we meet and part we Often say, ‘Namaste’, which means: I honor the place in you where the entire universe resides; I honor the place in you of love, of light, of truth, of peace. I honor the place within you where if you are in that place in you and I am in that place in me, there is only one of us." ~~Ram Dass~~