These are two very different paintings, clearly…The top one is the one most people like. For obvious reasons, as it causes less pain…I did it for them. The bottom one is about me…but no one likes it though I don’t care. Both are for sale if anyone is interested. Please get in touch with me by email or comment box to discuss price and shipping…
“A Murmuration of Starlings with ’32 Chevy” (free hand copy in oil paint of oil pastel drawing I did at Brattleboro Retreat and gave away) c. 16″ by 12″ oils on prepared paper)Spewing evil into the world. (Oil on canvas 30″ by 24″)
I love the idea that the two founders of the Women on 20s website want to put a female face on the twenty dollar bill, arguably the most used greenback in American paper currency. And I love all of the candidates they have chosen for the slate. But what I do not like is that they claim to have been unable — unable?! — to find qualified Native American or Latina women who might also be placed on the slate to be voted on.
A woman for the 20 dollar bill?
I don’t believe this for a second. Do you? Come on folks, help me, let’s do some research. Will you help me find the names of some Native American Women, and some Latina Women from the past (the ONLY necessary claim is that they must be deceased) that I could offer the owners of the Women on 20s site so the voting could really be fair to all? Otherwise this is discrimination all over again, and to groups that just get screwed again and again.
PLEASE Help? Then let’s get that site to go VIRAL for real! (I will put the link here next time, after we put our thinking caps on and get Native American and Latina names together to present to the site owners.) THANK YOU EVERYONE.
Art is all in reverse order of when it was done. If anyone is interested in buying, let me know. (Only some are for sale. Others are taken or donated already.)
Nevertheless, this expresses how I feel these days even though it is not a self portrait…Paper and Cloth Mache table I made for my living room…Sketch for painting that follows – Jason is one of the best neighbors i have had!“The Mottster Rocks Out” — My downstairs neighbor entertaining me, unwittingly, but to my delight, every night, as he practices his drumming!
Translucent Papier Mache Bowl
Actually, all the above was done in my apartment in Brattleboro, after I moved there. What follows was done before I moved here. Either in the interim, in Sheffield, or while I was looking for a place and living with a friend in CT.
Central American Welcoming Madonna, in gouache and acrylics c. 12″ by 8″Face Seen on Wastebasket and captured in a mask made of brown paper…Second Eyes Mask, made at the Retreat, pre-formed mask enhanced with paper mache and collaged with eyes and other papers…1st Mask of Eyes Made at the RetreatMacrame Jute Bowl, made of brown paper and edged with copper tape
I wrote some or most of this in 2009 but I want to rewrite and update it..
Art, capital A, saved my life. It did more than that. Art gave me a new life, new hope, and something to get up for in the morning. It’s not that I’ve stopped writing. But I had been writing in a vacuum for a long time and needed an outlet for my creative urges that involved more than just my brain. Oh sure, writing involves the hands, too. But not in the way I mean. What I needed was, well, what do I mean? In some sense I needed more activity, if only because my poor brain shuts down and goes to sleep whenever I read, and it simply capitulates to narcolepsy whenever I am sedentary. I have indeed tried standing up while reading and writing, but this doesn’t work for someone whose feet swell very easily. And I find that standing up is just more distracting than anything.
But also I felt an intense to make things, create objects or works of art that could be seen and touched and even smelled and if scratched or thrown to the ground, heard. I had no idea in 2009 that in 2014 I might even write a couple of rap songs before I succumbed to the impulse to retreat into self-imposed total mutism. If I were VIncent Van Gogh, I might even want to taste my art, but I will try to stick to real culinary arts when that urge overtakes me as I do not at the present time wish to be poisoned by cadmium red etc. Nevertheless, despite my lifelong love for words, I still wanted to create something physical, not just an imagined or recalled world in words, however long-lasting.
I have always needed to work with my hands. I once wrote a poem called Hand Hunger which some silly psychoanalytic candidate insisted was sexual rather than seeing the references for what they clearly were, to making and creating and building with the hands, to MANUAL LABOR and not to — (sheesh!) masturbation! I mean, how stupid and dim can you get?
Anyhow, I needed to make something or do some sort of craft or artwork. Fearing/Knowing that I could not do “real art,” (YASS,that was ME only a few years ago, telling myself that I could never paint a face! Listen up all ye who think YOU can not do art!) that I was not the stuff of which true artists are made, I always gravitated towards the crafty side of things. (But pray tell, what stuff is that, Pamela?)
So even when I – on a manic whim – dove into sculpture, creating that llama-in-a-day, Dolly the Llama,
the result was mostly folk art, which is to say, unsophisticated, rustic, and at best a craft-like work. Sure, I was pretty proud that I’d made a lifesize animal that actually stood up firmly on its own four legs. But with a deli-container-head (underneath the papier mache) and huge mailing tube body, scarcely concealed, big enough to have once held a large amateur telescope, it didn’t look much like a llama. In fact, the result was not much more than that tube covered with a few layers of paper and glue, and all of it painted red. Nevertheless, I was happy enough with “Dolly the llama.” I have to confess though that it took me a entire year after the psychosis and mania were treated to finish her. Her saddle blanket have fooled many into tugging at the finge to see if it is real or not. a trompe-l’oeil — eye fooling — success that pleased me no end.
But a year-in-the-making was too much time to complete a craft or artwork, even a life-size llama. I came to dread the work by the time I got to applying the last few strokes of paint. You really need more drive than that to do art, but I didn’t seem to be able to sustain the energy or enthusiasm for much of anything. in fact, I’m not at all sure how I managed to write even my part of the book DIVIDED MINDS given those obstacles.
Then, during my hospitalization in 2007 it seems one obstacle was overcome: on Abilify plus the Abilify-tempering Geodon I suddenly had both energy and stamina* (see bottom of post for a later 2014 discussion of this). Or perhaps it is simply that the medications enabled a “well me” to come out, someone who could sustain an artistic effort, even if it was for the very first time. Given a different life I would have been doing this sort of thing all along had I known it was possible, had I had that kind of stamina… But I didn’t think about this, no, for me there was no looking back.
What I did not know at the time I wrote those words back in 2009, or at least the connection I was unable to make, was that I had actually been on that same antipsychotic drug combination for a several years before this sudden transformation. But in late 2007, however, a small vascular malformation in my frontal lobe hemorrhaged. This was a small bleed, to be sure, but I later felt and some doctors have also agreed this was not impossible, that the timing was such that the bleed itself might in some sense have been responsible for the sudden production of Decorated Betsy
and as my new-found compulsion to do art as well as the felt inability to stop…
Since that time I have jokingly said, “Well, a little brain damage (in the right place) never hurt anyone.” Of course, that is indeed only a joke. because brain damage almost always DOES hurt people. But in this case it seems to have wrought a miracle in my life.
Over the years since Dec 2007, I have created many pieces, large and small, from bowls to two large tortoises and two geese, even a “crazy fruit” bowl. Also a large seated man, a child detachable from her hassock (not quite finished) and several small birds. My female sculpture, the Decorated Betsy, even won a NAMI national contest on creativity and mental illness. But why tell you about them. I will upload a few photos instead.
I am going to try to show you them chronologically, but without the many bowls I have made along with way, except for a few that are particularly special to me. Note that all the sculptures incuding a few that are not shown here, have been donated to someone or some organization, However if anyone is interested in purchasing a new sculpture, I do accept commissions.
This is the Dream Tortoise, otherwise known as Yurtle the Turtle, which is about 3 feet in diameter. It was my second animal, but my first turtle.
The prescription that this brightly clad psychiatrist holds in his hand reads: Dr John Jumoke, Rx: Art, Poetry, Music. I thought, well, that is one shrink even I wouldn’t mind seeing!
Psychiatrist Dr John Jumoke with Rx for Art, Poetry and Music
Trudy, papier mache child seated on paper mache hassock, donated along with Dr Jumoke to Otis Library in Norwich CT.
Crazy Papier Mache Fruit Bowl with Mini-Melon
Papier Mache “Herr Goose” commissioned by Ruth S, one of my favorite artists and mentors.
Herr Goose after revisitation for repairs…Click on the photo to make a close up and you will notice neck “feathers and the difference between this and the no-gold fully decorated version.
African Queen of Paranoia, finally photographed with the large gold cascading earrings that I also made for her. Reminiscent, so i have been told, of the bust of Nefertiti…
African Queen of Paranoia (reminiscent of Nefertiti) You can see that this resemblance was purely accidental, The bust was mostly an exercise in balance!
Papier Mache Bowl, painted with “slimemold fruiting bodies and plasmodium” motif, also papier mache apple
“Standish” Bird in Cage for Tim – Papier mache by Pamela Spiro WagnerWading BIrd-given to Joyce Kamenitz, MD. Paper bird painted with nail polish, made by Pamela Spiro Wagner, placed on cellophane covered mirror with stones and soil mixed with polyurethane and glued to mirror.
Papier mache hummingbird bird in tree branches made for sister, Martha, by pamela spiro wagner,
Dr Geuss: large papier mache goose made for the Northeast Kingdom of Vermont’s Human Services Approximately 3 feet tall
Finaly, my dear friend and art collector, Tim with papier mache Turtle I made for him (so you can get an idea of the size) Turtle’s head is large but the photo was also taken at angle so it looks larger…Notice copper sneakers, two of them with laces!
*As for Abiilify and Geodon “causing” my stamina and better endurance? I dunno what to say? I have little social stamina even now. But I stopped the Geodon almost as soon as I restarted it. I just feared taking any drug that prolongs the QT interval, one, and isn[t even approved in Europe for heaven’s sake! Why is that? I can think of two reasons. One is that it is NOT effective at all, not even enough for them to fake-believe it, or two, it is too dangerous for the Europeans even to subject their mentally ill to it. There may be other reasons why the European Union declined to approve Ziprasidone, but I cannot think of any other obvious reasons.
As for the Abilify, well, I have taken it, more or less, since I was in Care Bed, largely because they got me onto it and I am scared, frankly to stop it…And yet, I do have to “get myself” to take it each and every day, stop myself from simply removing it from the slot in the pill tray that it is in…I should. slowly, but I am afraid, I confess. My therapist at the Northeast Kingdom Human Services told me yesterday that I came extremely close to having been forced into the hospital this month…and she is worried about me if I do not take the fricking drug. But I do not believe it does a danged thing for me, nothing bad either, nothing bad that tis obvious at any rate…But what will it do down the road, and what was that stuff going on with my mouth when I was OFF it??? I want to know but I know no one will tell me or even test me for TD, because they do not want to KNOW…They do not want toi know if the drug is causing brain damage because of the consequences of their KNOWLEDGE both from me and for them.
FUCK THEM and FUCK ME. I don’t know what to do. Everyone has an opinion and everyone has a different opinion and because I do NOT TRUST MYSELF to know myself or my needs, I listen to everyone at least temporarily. I listen to everyone! But I cannot trust what anyone, any one single person tells me, because I do not actually trust any single person to know a goddam thing about it OR to tell me the fucking truth. That is the problem. Even Nancy, the APRN, who admitted that the drugs were imperfect and very broad targeting, etc seemed to be too enthusiastic for them, rather than trying to find a way NOT to use them. But that may have been because I myself raised a stink about their having taken a WHOLE bottle of expensive pills (GEODON) from my bags at CARE BED and not returned them to me,…I did not like that one bit.
i mean, I am not going to overdose or sell the meds, but I want what I came in with, and they are MY pills, goddam it! Wh=at right does ANY one have to take them from me! So i partly agreed to the Geodon just to get my bottle of pills back, only then it turned out that they wanted to give me a weekly tray so I would try to be compliant …so I did not get the entire bottle only a week’s worth which I frankly am not even taking.
I do not want to take any pills except for what I FEEL in my soul I need! I NEED 1) methylphenidate, or I cannot stay awake to do anything, esp not to drive any farther than 10 minutes away, if even that. I start yawning about 15 minutes after I wake up…You may think this is a bad drug for someone with a propensity for psychosis but having narcolelpsy is NOT my fault…I cannot stay awake for the life of me. And that was true well before I ever took any other drug. 2) I need topiramate because I really fear seizures, and because if it just reduces my headaches by one a week, it is worth it. I take severall vitamins in larger than usual but not mega-doses. I take a very small dose of a thyroid medication also, which I would not want to stop…Do I NEED Abilify or Geodon? Some people who have known me for years and in and out of hospitals say “Yes, absolutely!” some others say, No, not if you reduce the dose very very slowly..”
I do not have ANY inkling myself, none at all, but I want to believe NOT…I do not feel that these drugs do a thing at all frankly. Except bad things, especially in the case of Geodon. I do not usually like it when people tell me what to do, but I wish wish wish in this case that SOMEONE with influence would indeed tell me what to do. Precisely..and convince me. But no one is in that position, not any more. I am just alone and fucked…My therapist practically said, no she DID say: f you end up in the hospital it will be no one’s fault but your own, because you won[ take the Abilify….What sort of thing is that to tell me??? Should I just accept that and be quiet or what? Is she right? I didn’t like it one bit. I felt utterly abandoned and scolded and also basically told, well, you heard! It WILL BE YOUR FAULT! YOU TAKE THOSE PILLS OR WE BLAME YOU!!!!
Enough of this shit…I should, I suppose, have written something about my gratitude for this lovely holiday, the original one that presaged a wholesale slaughter of our good “Indian” buds we had over for the first T-day…ha ha ha. And how grateful I am for this wonderful country that treats everyone “equally” and with compassion and kindness (justice? Oh well, we need not mention JUSTICE, need we?Justice goes without saying, don’t it???) Ha ha ha, of course if you are melanin-challenged you might not agree that justice nor social compassion…But some folks in MO, and a certain MO town these past few days and nights have come to a different understanding about such things.
Okay enough for the “holy-day” chatter from me for now.
2.5 inches by 3.5 inches Cat on Braided Rug, drawing in colored pencil
ATC card of cat on Braided rug done with Caran D’ache Luminance pencils. Best pencils available but you pay for them!
Colored pencils
Also an ATC card, 2.5 by 3.5 in size, surrounded by a black mat and brown frame. This boat was pulled up on the shore of the wethersfield cove and was resting on the wooden slat of a railed fence.
This last picture of my Caran D’ache five dollar pencils… Because of their expense I make a big fuss about how to sharpen them. I used to use an electric sharpener because it was convenient, but the pencils were seater up immensely and wastefully so. Now I use a prismacolor pointer for the leads. (In case you would not, the one on the left is made from Dad’s ? I dunno, but I would love to see hatt picture framed and given to the, first..lI will give you a good photo and sculpture from the other book.
OK I am down for the count. Gotta of to sleep NOW.
Doctor Threatens Restraints and Shot of Haldol – Painting in acrylics c. 18 by 27 inches
This is a larger size painting than I am used to doing. I usually draw and I am scared of painting. When I have painted I have usually restricted myself to tiny sizes or just portraits. This is my first attempt at a real crowd scene or any scene at all. (I am tempted to redo the foreground doctor, to make him less cartoonish and more realistic, but for now, I will keep him as originally done. However, I don’t like the illustration quality of this painting, and want to learn how to be more painterly, so to speak!)
This flower, whose name, Self-Heal or Heal-All, says everything, and it is not insignificant that this was the first wildflower that started me on my Field Botany path, and was also the agent of my natural history conversion experience:
Self-Heal or Heal-all (My first wild flower and the one that changed everything)
Last night was a very difficult night, as you know.
I did not believe the nurse when she told me this morning that E–, who was an animal lover, would never have killed herself, leaving her beloved parrots to fend for themselves. She said it simply went against the grain of most animal people to kill themselves while their “children” still needed them. It turned out, though it took me a while to “grok” this, that E– apparently died of a combination of diabetes type 1 and asthma. The details are unclear and unnecessary but I was assured by both nurse and the building social worker that it was not suicide. Thank god.
However, early this morning things were not well, and I wonder if what happened later on was not at work last night as well. Let me explain:
I had an appointment to see my psychiatrist, Dr Angela, at 10 a.m. and as usual I got up to drive myself there, a short distance over the bridge to the next town, maybe 6 miles away tops. It is a trip I have done dozens and dozens of times, perhaps hundreds now.
This time, however, things were different. Halfway there, on a stretch of road — I’m talking back roads not highway — a road that I know like the palm of my hand, I was suddenly overcome by a feeling, an intense almost nauseating feeling of “jamais vu.” This is the opposite of “deja vu” — that sense that things you have never done have happened before. Jamais vu is the sense that while you are in familiar places or with familiar people, they seem strange or new or utterly unfamiliar. I have had deja vu many times, as have a lot of people, and I think it is a fairly common experience to feel as if something has “happened before” even though it is really a new experience.
But never before, at least not since I was ill, severely and neurologically ill, with Lyme disease, have I felt this intense feeling of non-familiarity in a situation that I know I knew very well. I was terrified, if briefly. I was not at all certain where I was. I mean, I kept driving, because my instincts told me to keep going, that my hands would make the proper turns. But my conscious brain had no recognition of where I was and no conscious notion that wherever I was I had ever been before. It was, as I said, terrifying and very, very strange.
Luckily, within minutes things had resolved enough so I knew that I had arrived at the Whole Foods parking lot, which my doctor’s office and the doctors’ complex shares. I still felt very weird. I felt in fact that I was not completely embodied, even though I carried a heavy enough bag to embody or burden down anyone.
When I got to Dr Angela’s office, the first thing i told her was that something was wrong. Yes, I had sent her the email I mentioned here yesterday, but I did not mean that. I meant the foreign feeling, the jamais vu intensity, which though faded still scared me. Thinking back, when i was so ill with Lyme it was actually deja vu, in an incredibly brilliant and vivid form, that afflicted me rather than the alienating jamais vu, but I knew that both deja and jamais vu can be commonly a symptom of either an aura or a seizure itself. Especially the much rarer experience of jamais vu.
I have had several different kinds of seizures in my life, and I have just been taken off Topamax, an anti epilepsy drug I have taken for years. I did this in preparation for a neuro-ophthalmology appointment in October (not sure why I thought it had to be stopped). So i have and had some sense that it was the d/c of this anti-convulsant that was the proximate cause if not the absolute cause for my symptoms.
But I was terrified that this jamais vu would generalize into a full-blown seizure, which I couldn’t bear the thought of. Dr Angela was quite responsive and suggested that I 1) take an immediate Ativan, .5mg as that is reasonably effective as an anticonvulsant, though better IV than oral and 2) when we found that I had stashed 100mg of Topamax in my pill compact, she had me take that as well, figuring I would get back to my usual 200-300mg within a week or two.
The appointment went — well, I don’t remember much about it, frankly. All I recall is leaving, promising to get a cup of coffee before I drove home, then realizing once I got to the parking lot that there was no way I could drive, coffee or not. I felt simply too weird. And weirded out. Too scared of having a full blown seizure, whether temporal lobe or otherwise to get in the car.
To my great luck, when I contacted my case manager, Rebecca, who works in next town over, she was immediately available and came to pick me up. That was a huge relief. I didn’t even have to wait more than 5 minutes. More, the Whole Foods grocery store people didn’t bat an eyelash when I asked if I could leave my car in the lot overnight.
Later on, Tim went and got my car for me, so I didn’t even have to do that. I simply went home and took a nap. When I got up I felt at least ten times better. Not so weird, not so seizure-y. Less scared, and finally able to be convinced that the huge balloon of misery and terror from last night was just that, a balloon, a mistaken notion…a fiction. I was wrong, that was all. Even though the conviction and certainty felt as real as anything, they were only FEELINGS, and as so many people including my brother assured me, those feelings would change if I hung in there.
Lo and they did change and have changed. Thank heavens.
Now it occurs to me that perhaps even that huge balloon of certainty may have been seizure-related. I don’t have any real reason to think otherwise. I know, I know, my shrink brother has his theories. But I felt so UN-conflicted about it, so hugely convinced, that the explanation of seizure activity, comparable to the certainty that I “have never been here before” of jamais vu even though I knew I had, and also knew, as I said, that I had not caused the putative suicide…this explanation simply makes more sense and feels “more right” to me. After all, why would I suddenly feel like I did anything to E— who was not all that important to me, or no more than anyone else in the building really. It felt morever just so hugely compelling, in precisely the same way that impending doom feeling of a temporal lobe seizure feels — it isn’t real but it is unshakable, utterly unshakable.
I don’t know, of course. The shrinks — and I include Dr Angela and my brother — would like to make it all about me, all about my conflicts and my mental illness however they want to define that. But I wonder now how much my ongoing (but unofficially diagnosed, that is, only by psychiatrists) TLE has affected me all along. I wrote about this conflict, this contamination of any schizophrenia diagnosis with temporal lobe epilepsy, and months ago. It seems strange that so many have “both”…|
Nevertheless, I have never had my seizure feelings checked out, largely because I do not want anyone curtailing my voluntary driving. And I don’t like doctors having that power over me. I also do not trust them to take me seriously, as a NON-psychiatric patient. I do take AEDs to prevent olfactory hallucinations, (NOT as mood stabilizers) and such, but why see a neurologist who might tell me I can’t drive a car for any length of time when I have never even had a fender bender from this? Or who might, and this would feel just as bad, tell me it is “all in my mind” not in my brain…!
All I want to say is that someone connected to me died on Saturday and I have reason to believe it was suicide. This is what I wrote to four people:
“The assistant building manager —– died — i am certain it was suicide — Saturday…i feel to blame, to blame, to blame. It is not that i knew or could have helped her, no, i feel like i caused her to kill herself. I’m shaking in –what? — terror, something! Even the music on Pandora is blaming me. What have i done?”
For hours there was no reply. I located two cigars in the bottom of an old purse, knowing what I had to do…I planned to place this photo:
Fire to Set something or someone alight…Me?
and let fate determine the consequences, both what eventuated in terms of the voices and what happened after that. All I knew is that even Pandora “radio” is blaming me for the death — suicide as I suspect — and I do not know what to do. I have already been responsible for two suicides of friends. How can I take this again>???
Then my shrink brother wrote me back, after I thought he was long ago in bed and asleep. I quote him in part: “you feel guilty for taking care of yourself. I hope that makes sense. I know it applies to me, so I’m not just saying it. Let it go. You had nothing to do
with her death. It’s sad, if it indeed was suicide, but just leave it at
that. I do think it’s more than symbolic that the person you’re guilty about was the manager of the building you hope to leave for good soon.”
Then he suggested that I take an Ativan (for a change?) and go to sleep. I wasn’t going to, I was going to do something that was ordered of me, and which I felt was essential. But I feel a little less alone, and feel as if I can hang on another night. At least he didn’t get angry and tell me I am not his “top priority”…as if I needed that rammed down my throat ever or again.
I may not make it all night, but if I can sleep it would help a lot. I barely slept last night at all and all these songs on the Bruno Mars’ station are getting to me. I am crying because of how bad I feel…
Will I get through the night? Only the future can tell. I will take the Ativan, against my better judgement, and I already took the half that I refused of Geodon, much against my judgement because otherwise I would be blamed for everything that happens from now on. I do not need the Geodon, but I know what the nurse will say if I refuse it. Until I get to Vermont and then I am free to do what I choose, and if that means — well, I won’t go there right now.
Thank you for listening, if anyone out there really is — either there or listening.
This is what the voices really instructed me to do…
Jason DeRulo, painted with fantastic CARAN D’ACHE Lumiere pencils, among the most expensive yet worth every penny. smooth and incredibly buttery color that just swipes on…Yet hard enough to keep a point and not crumble under pressure.
Just make sure you sharpen each pencil by hand as you don’t want to waste a smidgen of these valuable tools!
Jason DeRulo = my art photo isn’t the best but it gives you an goodish idea of the portrait..(colorized from B&W and reversed so the left is right etc.)
I have loaded a DeRulo music vide (lyrics) to go with my portrait, but who knows how long it will remain playable. ANy opinions on portrait welcome. I had to imagine the colors from a B&W photo, then imagine Derulo again, having reversed the orientation horizontally so his left becomes his right etc.
(Now it might not look like him at all, taken from the mirror reversal of the photo.) Enjoy song for as long as I can keep it here. (since embed buttons exist, I have to assume it is okay to “borrow” these vids.
Would love your opinion.
BW
Pam
PS am very very sleepy so not entirely sure I am uploading anything that makes sense. If not, forgive me. I will do better after a nap!
Although I usually draw with my right hand, this portrait sketch of the young Theodore Roosevelt was drawn with my left, and is much freer and (I would hope) truer to life than the right-handed portrait I had drawn earlier. I started with ballpoint pen, then “corrected” with green, brown and blue pencils in sequence. Eyes, TR’s right eye especially, still aren’t right, but I couldn’t do any more corrections on this particular sketch. Better luck or one would hope more skill maybe, next time…
Tim with Papier Mache Turtle I made for him
I dunno that more need be said about this picture except that Tim is a dear friend and I owed him this turtle for two years before it was actually finished…
Recent art work. all are ATC (Artist trading cards 2.5 by 3.5 inches) except the last.
Lovelorn White Donkey on Vermont farm pines for the black male, but he only ignores her!Birth of Wisdom (Or the Eye is watching you…)Water over the Bridge (a play on the notion that the past should be “water under the bridge.”)Farmhouse, where the owners lived, across from where I stayed this summer in VermontThis is where I stayed last summer, and where I am returning. For a month or two…at least.Tidal Wave ATC (Artist Trading Card)Ghostly Face Trading CardThe Eye Watches, But Let’s Not Say Anything…Shhhh!
Encounter in Seclusion Room – collage of torn paperHospital Seclusion Room
Nude Schizophrenic IN restraints While Bored nurse Looks On
you get the idea….no violence, just a scornful set of nurses and aides and a security guard willing to do anything he was asked…and chaos broke loose with terrible consequences.
Moth Wing Picture — Made from wings of moths found each morning in Vermont
Transformation into the Vermont Butterwolf!
Butterfly Wolf or BUTTERWOLF! (I was just having a little fun, digitally with a program called art studio but I really did glue a lot of moth wings to a piece of mat board before I fooled with digital pen and paint.)
Actually I “deserved” four-point restraints. I was “violent.”
Nude Schizophrenic patient in 4-point restraints
But I want to explain what “deserving” restraints and being “violent” at New Britain General Hospital (Hospital of Central Connecticut) means in 2014.
I also want to tell you something else even more important: In Connecticut, the staff at almost every psychiatric unit or hospital will insist that “we only use seclusion and restraints when essential, when a patient is absolutely out of control and extremely violent, and cannot be controlled in any other way.”
Trust me, I know, because they have said this to me.
But what you need to know is that they are NOT talking about some 300 pound man hopped up on PCP, waving a machete. For one thing, that person, whom I believe to be largely mythical at least in ordinary psych units, or if real now largely confined to correctional and law enforcement settings, the person they are talking about, the rule, not the exception to the rule of the “extremely violent” person whom they claim must be restrained due to lack of any other method of control, is, to put it grammatically correctly, I.
And let me tell you about me. I will turn 62 years of age in November. I am 5 feet 3 inches tall, weigh, maybe 110 pounds on a good day, and have been consistently described as “poorly muscled.” I am also unable to use my left arm for much of anything, due to injuries sustained at the Institute of Living in 2013, including a small tear in my rotator cuff and possibly more than that– a fact the HOCC nurses/security guards knew and used to their advantage when subduing me. I also want you to know that I am a decades-long vegetarian on the principle of non-violence — to people as well as to animals. I have opposed the death penalty since I was a nine year old child (when I first learned of it) and do not even believe in the principle of prisons, or in treating our convicted “criminals” the way we do now.
Yet in every single hospital I have been in since 2000, and of course for years before then (“before they knew better”) I have been brutally secluded and restrained multiple times as “OOC” — out of control — and “violent.” In addition to either physically holding me down by brute force, one person to each limb and one to my torso (this was at the only 2 hospitals that did not actually resort to mechanical four-point restraints– compared to the dozen others that did), they would routinely inject me with one to three drugs as chemical restraints.
I am the rule, not the exception to it, of their supposedly “extremely violent mental patient” who is so OOC — out of control — that Connecticut hospitals refuse to eliminate the use of restraints and seclusion, because they “might need them.” I am the typical example of the person they claim they absolutely must have the right to resort to violence against, for their own safety and mine.
Okay, so am I truly violent? What did I do to deserve their brutality? Or should we say, their “protective measures?” Well, at HOCC, in the Emergency Department, this is what happened, and I kid you not: I came in by ambulance, involuntarily, in the sense that I did not want to go but was brought in by EMTs and given the “either the easy way or the hard way” choice by police. But I did not resist it or fight. I was not restrained in the ambulance. in fact, I was mute and merely handed them my med sheet and my detailed Advanced Directive, on the first 2 pages of which is the important information about my trauma history and the critical need to know points about how to deal with me.
When I arrived I was quickly shunted to the psychiatric crisis section and into a curtained off cubicle. No one took my cell phone from me, or the single book of my artwork that I had managed to bring with me. So I texted everyone I could for as long as I could. For a while I tried to obtain a crayon to communicate with, eventually and in desperation, writing with ketchup on the outer carton of my dinner container, begging for something to write with. Instead of helping me out, the head ER nurse penned me a note saying that I would not get anything to write with, that either I spoke out loud or she would not listen to me. How very odd and evil that she wrote this to me! She didn’t speak to me, she wrote it, as if I were deaf, even while saying that she knew I could speak and would not talk with me unless I did so… The idiocy of that act just sends sparks of rage through my brain even now. She later spied my art book next to me on the gurney, and suddenly rushed me, snatched it out from under my thigh and raced away with it, holding it triumphantly as if she had won a prize. I was incensed. Why hadn’t she just asked me for it? And how did I know what she was going to do with it? Would she keep it safe and sound? Actually, though, I mostly just reacted instinctively: Someone had stolen the only thing I had of my own in my possession, and she had simply snatched it away from me, without a word or even a polite request. So I did as anyone would do, I think. I raced up behind her and snatched it back! Well, that was a mistake. That was bad, that was bad bad bad. I heard people groan and swear. I was grabbed from behind by two security guards and the book was wrenched from me again.
Remember, I was mute so I couldn’t say anything, but I tried to resist, tried to gesture that the book was mine and she had no right too take it from me. Instead of explaining that she would protect it and take care of my things, people started talking about how I had attacked the nurse, had assaulted her…She told them to put me in seclusion. The guards dragged me, resisting in panic, towards this hidden room, and I heard another nurse warn them of my medical history with a torn left rotator cuff. Hearing this, the guard on my left side, grabbed my shoulder and wrenched it higher until I let out a blood curdling scream, wordless but vocal. “Aha! I thought you could make sounds!” he said in triumph, wrenching me again until I sobbed in agony. Then they dumped me in the seclusion room, with only a hospital johnnie on me, and locked the door behind them.
Even though I had no words to speak my rage and panic, I screamed and screamed. They came through the door with needles, held me down and injected me. Then, when in a rage reaction, I disrobed, they decided to four-point restrain me. I heard a guard say, “we really have no reason to restrain her, you know.” But the other said, “It doesn’t matter, we will find a reason.” So they did . Terrified, I did not resist, because they held me down by the left shoulder causing me so much pain I was afraid they would hurt me permanently. I also hoped upon hope that if I didn’t resist, they would let me out quickly. Believe me, I had been through this routine enough to know what to try to do to minimize the consequences and the damage…
Fast forward to my being sent to the psych unit, about which I no longer had any choice, being labelled violent now and OOC as well as mute and schizophrenic (I hate that word but they used it). When the doctor who admitted me, Dr. Michael Balkunas, came to see me the next day, I was still mute. He asked me how I was and I gestured my need for a writing implement to answer his questions. He coldly told me that he would not speak with me if I would not talk out loud. Then he got up and walked out the door, with nothing more to say. I was by then so upset and outraged that I got up off the bed, which was the only furniture in the room, and slammed the door after him. I meant only to make a noise to express my frustration, but unfortunately it caught him in the shoulder. This was not intentional, not that I recall, though I confess I was so enraged by his dismissal of me, especially after the violence inflicted on me not once but twice the night before in the ER on his orders, that it is possible I wanted the door to make contact with him. What I know is that I most certainly did not intend to injure him. I only wanted him to know, before he walked away from me, that I was angry and “speaking” to him the only way I could. Dr. Balkunas’s reaction was itself swift and violent in the extreme, and extremely personal. Enraged, his face beet-red, he bellowed at the nurses to order guards to force me into “Seclusion! Seclusion! Restraints! Restraints!”
Before I could do anything or even assent to walk there, I was bodily dragged down the hall by my injured shoulder, to one of the most horrifying seclusion suites I have ever seen. A set of two cells, each lockable from the outside, completely barren and cold except for a concrete bed set into the concrete wall, with a plastic mattress on it. Nothing else. No commode, no bed pan, nothing but two obvious cameras in the ceiling, but no obvious way for me to communicate with anyone. They locked me in, locked the second door a room away, so I was thoroughly alone and soundproofed from the rest of the unit, and walked away. I panicked immediately, and urinated on the floor in my panic. I took off my clothes. I screamed — wanting someone to talk to me, I wanted warm dry clothing to wear, but there was no response. I screamed and screamed. Nothing. Not a word. I did not even understand at that time that there was an intercom they could hear me through. I thought I was completely alone and abandoned, but for the eye of the camera. So I did what I had to. I KNEW what would happen, I knew this because it was SOP. But I was freezing in there, with the A/C on full bore and at 110 pounds and a history of frost bite I cannot tolerate being cold. I also had NO inkling as to how long they would keep me there, one hour or sixteen. All I knew was that I could not tolerate the isolation, one, and I would not survive the freezing temperature, two.
So I took the urine-wet johnnie I had taken off and I rolled it into a rope and tied it around my neck. I pulled on it as if to strangle myself. It was useless of course, because I couldn’t keep pulling it without letting go and then I would breathe. And I didn’t want to die, I just wanted it to LOOK as if I were strangling myself so someone would come in and I could explain that I was COLD! Well, finally the intercom crackled to life and someone said, “Pamela, take that away from your neck now.” I gestured something that clearly indicated, “I’m freezing cold!” The voice spoke again, “If you don’t remove that from your neck, we will restrain you.” I answered silently but in clear gestures, “I need something warm to wear!” Well, this was a battle I was destined to lose, of course. And eventually but not so quickly as to indicate that they were seriously concerned about my safety, guards and nurses entered the room, along with a gurney, and they did as they had threatened, injuring me in the process. They grabbed me and hoisted me onto the gurney and locked me into leather restraint cuffs, in a painful and illegal spread-eagle position, despite my groans of pain and protest, then they refused even to cover me with a blanket. Someone threw a small towel over my lower torso and that was all. They they positioned an aide at the door and trooped out. I screamed my lungs out, and gestured my desperate need for water and warmth, but the aide simply ignored me, saying she wasn’t permitted to talk to me, and couldn’t get me what I needed. That was how violent I was. And that is how the most violent patients are treated and why they MUST be restrained, for their own safety and the safety of others…Right? NOT! ALL the other times I was secluded it was because i was disturbing the peace of the unit. I was loud and complaining, or simply “agitated” because i walked the halls too much.
That was it. That is the rule not the exception, and if you read my posts about my incarceration at the Hartford Hospital Institute of Living in the winter of 2013 you will get a similar picture. I am not the 300 pound crazed man on PCP wielding a weapon, no, I am a small, elderly woman who is non-compliant with the unit milieu and wants only to be warm…that is about it. But each and every hospital claimed that I had to be restrained, that they had NO alternative, that I was so violent that they had no choice, even though it often took only one or two people to do so, because I didn’t resist or say a word, just lay there while they pinioned me to the bed. Now you tell me that restraints and seclusion are necessary ‘modalities of treatment” that cannot be done away with because they might be needed in an emergency. Emergency schmergency. I am that emergency and they were and are NEVER needed, EVER.
When I was at New Britain General Hospital in the spring of 2014, the security guards stripped me naked and left me in the freezing and barren seclusion room…This is a depiction of a younger woman largely because no one gives a damn about what happens to a 61 year old woman anywhere..but the seclusion room is pretty danged accurate.
Dr Geuss: Life-size Papier Mache Goose made for Vermont Northeast Kingdom’s Human Services
Dr Geuss: Papier Mache life-size goose made for Vermont’s North East Kingdom’s Human ServicesSea Turtle in Turquoise and Blues…Water soluble oil pastel c. 7 inches by 6 inches